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Missouri

LFA, Heartland Chapter
(314) 644-2222

Monica
Diagnosed at 17
It is hard some days to walk, get up out the bed, and it spreads to your major organs. Lupus is nothing to play with. If you have lupus please see a doctor and take...
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Rxgal2
Diagnosed at 40
Lupus, yes it is cruel...so cruel that by time I was 50, I have been hospitalized 32 times, had a PE, 13 clots in my heart, and 2 brain bleeds! I'd call that pretty...
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Megan
Diagnosed at 12
I was diagnosed in September of 2008, at age 12. Almost lost my life, But as living proof, it does get better. If you or your love one is like myself then denial i...
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Dmoomom
Diagnosed at 44
A person can go for many years before they are diagnosed with this disease. I had my first flare up when I was 18 and pregnant, but was not actually diagnosed until...
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Jeanette H
Diagnosed at 40
It doesn't affect everyone the same! I didn't know anything about Lupus until I was diagnosed.
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Jennifer
Diagnosed at 17
Lupus doesn't effect everyone the same, but we all know how we feel. The stronger support you have, the easier it is.
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Beatrice
Diagnosed at 34
There are up & down, Happy & Sad, weaker and sometimes stronger days. I hate the days Im angry & not sure where it comes from. In tired all the time, my hair has co...
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Beatrice
Diagnosed at 34
There are up & down, Happy & Sad, weaker and sometimes stronger days. I hate the days Im angry & not sure where it comes from. In tired all the time, my hair has co...
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NormaP
Diagnosed at 28
Lupus is real.We do not fabricate the symptoms.We are not contagious and we will not break if you hug us..We need a strong support system,and more research on this ...
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beth
Diagnosed at 23
To look at someone who says they have lupus and you say you dont look sick.We may not look sick but many of us are very sick.Many of us have pain that keeps us from...
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Kenya B.
Diagnosed at 18
Everyday isn't the same. Everyone story isn't same. It's not contagious. We live everyday with pain. We want people to get educated and tested if they have symptoms...
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Lisa
Diagnosed at 29
This truly is an invisible disease. It is so hard for family, friends, co-workers, etc. to understand your bad days when you do not "look" sick. It is so important...
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Jill L.
Diagnosed at 52
I would love to be able to wake up in the morning and feel normal again. Have energy and no pain. To be able to walk out in the sun without the fear of causing my...
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Wrennie
Diagnosed at 26
If you are having issues, symptoms, whatever the case may be don't hesitate... find the right doctor! Be persistant! There is such a vast number of ways this diseas...
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briget
Diagnosed at 35
That my life isnt the same 2 days in a row. For example my vision changes so much that I have 7 pairs of glasses. I never know which ones Ill need. Thats just the e...
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stephygyrl
Diagnosed at 29
The hardest thing for me is the lack of energy and trying to take care of three young children.
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Leah W
Diagnosed at 29
I want people to educate themselves as much as they can for Lupus is a rapidly on the rise disease. 1.5 million people in the US alone suffer with it while it costs...
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kimw
Diagnosed at 24
I want people to know about this disease period. most people have never even heard of it. I want lupus awareness to get the same attention that breast cancer gets....
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Lee
Diagnosed at 18
I want others to know that Lupus is a serious chronic illness and this disease will either make you or break you! Remember through the fire comes the finest steels!
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Kimberly S
Diagnosed at 42
It affects every aspect of your life and your family's life too.The mental devastation added to the physical problems is devastating!
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Heather
Diagnosed at 30
If you know someone suffering from Lupus or you are suffering from it, EDUCATE YOURSELF. Learn everything you can about available treatments and trials. Find not on...
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jess<3
Diagnosed at 24
I have been living with lupus for 13 years now. I'm a fighter and will continue to fight! Even though I'm very active I still live in pain daily. Looking at me you'...
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hoodtracee
Diagnosed at 48
I have been through very serious illnesses on and off for twenty four years now that have all stemmed back to what I finally have a name for now. LUPUS. My first ho...
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Beth
Diagnosed at 39
It's such an "invisible" disease. You can look healthy and energized yet feel so weak and fatigued. It's the great imitator! Having an auto-immune disease looks ...
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Reese
Diagnosed at 34
We look like everybody else, just because I keep a smile on my face, doesn't mean that I'm not suffering.
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Robin H
Diagnosed at 38
Please don't feel that even though we may look well on the outside that are are feeling well. We live and suffer through pain everyday and put on the bravest of f...
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DONNA
Diagnosed at 38
I would like people to know that we still need friends. We have to cancel plans a lot because we don't have any energy or we are suffering from some illness. That ...
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Isa
Supporter
LUPUS a word that is just intriguing yet frightful. Lupus once diagnosed can be control but sadly enough there isnt a cure YET! When there's hope anything is possib...
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Dayna
Supporter
I want people to know how real and horrible this really is. I hate watching my best friend hurt.
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JILLdaBEAN
Supporter
People should know that just because we don't "appear" in pain, it doesn't mean we aren't. We don't always wear our symptoms out in the open for everyone to see. Mo...
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MB
Supporter
THAT YOU ARE NOT ALONE IN THIS FIGHT. KEEP FAITH IN GOD AND TRUST THAT EVERYTHING IS IN GOD'S HANDS.
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Kevie
Diagnosed at 39
It's very unpredictable. Your day can start off great and before you know it you're in excruciating pain.
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Shelley
Diagnosed at 22
Lupus is a frustrating sometimes painful disease, but it is manageable with good doctors, proper medication, rest, and the support of good friends and family. Keep...
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Terriannb
Supporter
The words I hear most from friends and family are "you don't look sick" and "Maybe if you'd stop taking all those medicines you'd feel better" and "if you'd just st...
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Beki
Diagnosed at 37
Symptoms of Lupus vary from person to person. It is possible to have this Disease without the typical "butterfly rash" and other symptoms. Also, having 1 auto-imm...
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Darlene
Diagnosed at 41
I want others to know about a drug called naltrexone being used for lupus. I take it and it is working very well for me. I have been in remission for 2 years sinc...
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ChristineR
Diagnosed at 43
SLE or lupus, is a systemic autoimmune disease that can affect any part of the body. As occurs in other autoimmune diseases, the immune system attacks the body's ce...
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Judy
Diagnosed at 34
Lupus is a very bad disease which destroys vital organs the older you get. Your body is just a wreck and makes you so mad that you can't do things you used to. I cr...
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just me
Supporter
Lupus is tough and you are tougher! Never stop living and don't become a victim. When you give up to Lupus it will take you over. Be strong and fight hard! I dr...
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Gwen T
Diagnosed at 48
Lupus is an autoimmune disease. It is when your immune system attacks your own organs and tissues. This cause inflammation and damage to different parts of the body...
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kim guice
Supporter
wouldn't wish it on my worst enemey
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Alex
Supporter
Lupus isn't contagious! It is a disease that could affect anyone, even someone close to you. There are more people living with lupus than most may know yet many peo...
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CHS1979
Diagnosed at 30
Lupus is an invisible illness. Sufferers look relatively normal on the outside. On the inside, their body is attacking itself.
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Rachel M.
Diagnosed at 26
- I want others to know that this isn't a death sentence. - You may have to "tweak" your plans many of times...lol...but life with this medical malfunction is ...
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Alli
Diagnosed at 45
Some days I don't have the energy to fight, won't you educate yourself and others, so you can pick up the gauntlet when I fall down.
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