Facebook Twitter You Tube
Lupus has many voices.  Add Your Voice »

Nebraska

Lupus Foundation of America, Inc.
(888) 385-8787

Henry S
Diagnosed at 50
I've had lupas most my life it started with bad rashes in the sun. Never getting a answer for what I had, even while in the navy I suffered a lot with each year pas...
View Full Profile
Brandy
Supporter
My husband and my daughter have Lupus. Our daughter is 18 and was just diagnosed on March 2nd. We had an 8 day hospital stay very recently when we thought she was...
View Full Profile
MintyPanda
Diagnosed at 15
It's surprising how much hurt someone can be hiding beneath a happy face. Lupus is a chronic disease, and it never goes away. We learn to deal for the sake of other...
View Full Profile
Mindy
Diagnosed at 35
Lupus to me is like having an internal secret that could be destroying you. No one can see your struggle, but you struggle everyday to keep it all together. I try...
View Full Profile
Bea_J
Diagnosed at 48
The best thing you can do is find a doctor who not only understands lupus, but who understands and is willing to follow YOUR personal agenda. Every infection is ha...
View Full Profile
Angela
Diagnosed at 30
I would want others to know that Lupus is a potentially life-threatening autoimmune disease, but is not always visible on the outside. Everyday is an absolute stru...
View Full Profile
Melissa
Diagnosed at 8
Lupus has many faces. There is no "one thing" that defines it. There is one thing that defines us as lupus warriors though: COURAGEOUS. There are many uncertain...
View Full Profile
Cassie
Supporter
I want to know how I can raise money for treatments.
View Full Profile
Maureen
Diagnosed at 40
Living with Lupus is like being on a rollercoaster and never being able to get off. And the track is constantly changing. And I hate rollercoasters!!! So, everyd...
View Full Profile
BeverlyB.
Supporter
Don't let it run your life, live happy!!!!
View Full Profile
Kim
Supporter
It affects a lot of people!
View Full Profile
LeahMC
Diagnosed at 26
Lupus doesn't mean death sentence. It just means live life day to day (to me anyways)
View Full Profile
lridpath
Diagnosed at 31
Just that we might not look sick but the last thing we want to hear is how good we look. It makes me feel guilty for being sick.
View Full Profile
Matthew N.
Diagnosed at 15
Lupus is a disease you should take seriously! I ignored the fact when I was diagnosed and didn't want to believe I had it. It had a really big impact in my life!
View Full Profile
brandibear
Diagnosed at
How difficult it is sometimes to diagnose.
View Full Profile
Melissa
Diagnosed at 8
A diagnosis of lupus does not mean your life is over. It is vital to learn all you can about your diagnosis, and to work with your physicians to determine the best...
View Full Profile
Juli
Diagnosed at 7yr
Lupus is not easy to live with you have your ups and you have your really bad downs. Not easy to live with when your a child or a grown women.
View Full Profile
Kathy
Diagnosed at 45
hmmm...I hurt for a reason. That reason was found out last week! Knowledge is power & ignorance isn't bliss. Getting treated correctly I can live better NOW! No mor...
View Full Profile
Jessica R.
Diagnosed at 20
Lupus rears its ugly head at all ages! I went four years without a diagnosis or treatment due to my age. Doctors kept tell me that I was too young and too good of s...
View Full Profile
kryslanae
Diagnosed at 19
Lupus is such a frusterating and annoying disease to have. You get told "you look good on the outside so you must feel good on the inside" by others, when they don'...
View Full Profile

Return to All Profiles page

Pin It