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New Jersey

LFA, New Jersey Chapter
(973) 379-3226

LFA, Philadelphia Tri-State Chapter
(215) 517-5070

Norma Shaw
Diagnosed at 45
Most people do not know how you feel. You may look ok but feel very tired. Also they don't understand the Sun problem. Questions It is such a nice day did you ...
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WhoSAT?
Diagnosed at 13
Know when to lay low & take care of yourself. Your personal health & well being is a priority. Find a good rheumatologist who specializes in Lupus but be open to a...
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Valerie
Diagnosed at 51
Since I was diagnosed with Lupus I have gotten seriously ill one time I really felt so fatigued that I could barely hold my head up, but with God and my prescribed...
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Fernande
Diagnosed at 30
Everyday I make a vow to myself that I will not let Lupus win. Thankfully, I have not broken my vow. Even on days when I am too tired to do anything, I call a frien...
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Mom of 2
Diagnosed at 38
Although, I've struggled with symptoms for a long time, I was finally diagnosed 1 1/2 yrs ago. I am learning to put my needs first and manage my symptoms to live a...
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Nise65
Supporter
In 2010 I was finally diagnosed. I have never felt so helpless. The pain,helplessness,people think your fine, looks are Deceiving, the sun is your enemy, what ever ...
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Denise
Supporter
No one deserves to suffer or be in pain. We need to find better answers, and a cure to this cruel and mysterious disease.
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Lulu Lupe
Diagnosed at 48
Well, I must have had it for years mildly and blamed everything on periomenopause. I didn't understand why I always felt so aweful. I blamed it on age too. If yo...
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Kate Avino
Supporter
Lupus is sly and covert. It is tough to detect and difficult to treat. It effects not only the patient themselves, but those around them. This PSA was made for my G...
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shyan
Diagnosed at 14
I WANT TO NO WHAT CAN LUPUS HELP ME WITH I HAVE LUPUS NOW FOR 6 YEARS ITS BEEN SO HARD ON MY MOM SHE BEEN BY MY SIDE ALL THESE YEARS SHE TRY TO GET ALL THE HELP FOR...
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jackie o
Diagnosed at 30
I am going to beat this lupus. Am going to live to be 100 years.
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yvette
Diagnosed at 41
i not only have lupus but also server r/a and at times i get so upset cause my body is tired and i am not able to do things like i use to but not being on any kind...
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OVERCOME
Diagnosed at 30
Since being diagnosed 17 years ago I have been through it all, strokes, convulsions, shingles and a kidney transplant and much more. Being positive is the ONLY way ...
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Salina
Diagnosed at 25
Lupus can be cruel to your body and mind but when a good day without flare comes along, I embrace it to the fullest!!
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JANETV
Diagnosed at 54
Its not funny. You are in alot of pain. Many nights trying to sleep, I will just cry when I turn or try to get up. People don't know what to do for you. I don't wa...
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Trish C
Supporter
I was diagnosed 42 years ago. Lupus is not a death sentence. I wish the media would show a person living with lupus and doing well.
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Pat
Supporter
Lupus is a disease that many are still unaware of. While a person who has lupus may look perfectly healthy, they are usually in some type of pain and often fatigue...
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lbel
Diagnosed at 58
I was on estrogen replacement for 10 years. After going off estrogen I began noticing many symptoms. After many tests no one could give me a diagnosis. Finally, blo...
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nancy
Diagnosed at 38
lupus is so unpredictable .more people need to know what a daily struggle that a person goes through.i always get but you look fine .you don't look sick for peopl...
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Arlene
Diagnosed at 28
Lupus is very difficult to diagnosed and many dr doesnt know how to treat you. Since 2006 I was fighting with a lot of different illness including: anemia, joint p...
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Jessica
Diagnosed at 25
Many people do not realize how devastating the effects of Lupus can be to your life, and for those close to you. People need to understand that although you may not...
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Denise Ewa
Diagnosed at 42
Lupus affects my everyday living.. whether or not I have a good or bad day.. on the outside.. I look fine. on the inside.. im hurting... really bad.. my bones hurt....
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MarvelousM
Diagnosed at 36
I want people to know how severe a disease it truly is. Sure there are athletes, actors, actresses, singers, and everyday people talented in their own right that ha...
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Miss D
Diagnosed at 49
Lupus has snuck into my life and I REFUSE to let it rule what I do and who I am. After thinking back about the years of medical problems I have had I can now see th...
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wyanet
Supporter
The body aches ,bruising, & other symptons meant nothing to a 22 yr old. As I got older & found out I had stge 5 & that I was in kidney fallure @ the age of 38 all ...
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Gina L.
Diagnosed at 38
I want others to know what lupus is, and also what it is not. Since my diagnosis, I have been very surprised to learn that so many people have no idea what lupus is...
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Neicee W.
Supporter
No one knows the cause of Lupus. It is 1 big mystery. A combination of genes, enviroment & hormones can be involved. Those with the genes can have a trigger that br...
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Denise
Diagnosed at 45
Everyone needs to know how debilitating this decease is, and just because we don't look sick doesn't mean we aren't. And there are no medicines we can take everyday...
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Jen
Diagnosed at 40
I had symptoms in my mid 20's...including a "butterfly rash on my face", infertility, muscle and joint pain, etc..., It wasn't until I turn 40, and insisted on a fu...
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Lisa
Diagnosed at 39
Painful muscles, joints, skin issues, swelling, & extreme fatique. I wish it would go away! Still learning to adjust everday to something different from the last da...
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CD
Supporter
Those that live with LUPUS daily, want you to listen and understand what they live with on a daily basis. Being there for someone makes a big difference......
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Mary-Jo
Diagnosed at 32
Lupus has affected my life since I was a teenager. It took almost 15 years to get a correct diagnosis. My disease has never been in remission even though I been o...
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Sharon T.
Diagnosed at 39
Lupus requires making very calculated choices in order to avoid getting over tired and over stressed. As much as I don't like to stop and rest, I find it better th...
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Claudia
Diagnosed at 38
Don't let Lupus change who you are. Keep doing what you had planned to do.
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sonia
Diagnosed at 36
information but in spanish
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Kimberly
Diagnosed at 32
Lupus impacts every single day of your life. I live by the thought that I have Lupus but it doesn't have me!
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mrsschenck
Diagnosed at 27
We need a cure!
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Sandra
Supporter
That isn't a contagious illness. Some that I met think that Lupus is like HIV. It hurt seing a person walked out from you.
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Bill
Supporter
I hate Lupus and I don't even have it. I just hate what it has done to my wife and so many other people in the prime of their life. It is invisible...You can't alwa...
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Shannon
Diagnosed at 23
Lupus is an invisible illness, in that sometimes sufferers "don't look sick" but may be very sick inside...It is a disease you can live with but that can greatly im...
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aishah7
Diagnosed at 33
Get tested don't take the symptoms that you have for being something else or making an excuse as to why your feeling that way.
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Dek5
Supporter
My little brother David had lupus since he was 13 he recently passed on at the age of 23 I watched him fight lupus for many years so therefore I dedicate my music t...
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Erin
Diagnosed at 29
My goal is to educate on the illness, address the stigma associated with invisible illnesses and advocate for a cure.
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Denise
Diagnosed at 34
The exact cause of Lupus is unknown and Lupus has no cure. I raise awareness for Lupus in hopes of finding a cure. I hope that my children will not be inflicted wit...
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Natalie hutchison
Diagnosed at 19
Lupus is a devastating and heart wrenching illness. Many people do not know about it until they are faced with it. By then its too late their sick and have no clue ...
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AJ Smith
Diagnosed at 32
It destroys you from the inside out, the pain is physical as much as it is emotional.
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littlemom
Diagnosed at 36
That this illness is not contages.
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Tesha
Supporter
I wouldnt wish lupus on my worse enemy its the most painful thing any human can endure.none of my freinds really understand what im ggoing threw everyone says i don...
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Christina
Supporter
It rears it's ugly head unexpectedly, even after years of being in remission and asymptomatic. It's manifestations are unpredictable, ranging from mild to life thr...
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Carolee
Diagnosed at 41
Awareness
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DebbieKohn
Diagnosed at 52
The causes of Lupus are unknown, but living with Lupus is a disease no one should go thru. Its an autoimmune disease that causes syptoms of joint & uscle pain, fat...
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Alba H.
Supporter
Lupus will not stop until it expires it's victims...please, please, try to live a stress free live. Lupus feeds on stress.
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sandy
Diagnosed at 43
That no matter how it makes you feel, there is always hope...
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Nye
Diagnosed at 24
I want others to know that because you may be living with Lupus, this does not mean its the end of your journey. I take it as a beginning. A way to show you can ove...
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tnich
Supporter
Lupus is a very complexed disease with many facets. It changes every aspect of your life. It alienates you. It causes you to feel alone and frustrated. It causes yo...
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Teenahope
Supporter
When I was 15, I was diagnosed with Lupus. Until then, I was a normal 15 year old. I went to school, hung out with my friends, was probably more than a little boy c...
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mm.adler28
Diagnosed at 18
Lupus is an illness that I had heard of but never knew exactly what it was, therefore when I began having symptoms my family and I were clueless. If more people wer...
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fuloffaith
Supporter
Everyone should get themselves checked out if they have any inclination of having this deadly disease. I have come across many people who have never even heard of L...
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Jen
Diagnosed at 19
People have heard the word "lupus" but seldom know what it actually is. Education and awareness is everything.
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Felicia
Diagnosed at 14
It can drive you crazy not to know what you have before they find out what you have. If any of you found out like me, you may have had days of waiting to know what ...
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EMLaBell
Diagnosed at 46
I was just diagonised and at first I felt so alone but now since I have read up on lupus and see all the support that is out there I don't feel alone anymore. I a...
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Kassonah
Diagnosed at 27
What I want others people to know about lupus is that it is a ugly diseases that attack your body.A lot of poeple tell me all you got to do is take your medican and...
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MyLupiLife
Diagnosed at 28
Lupus is a complicated and debilitating disease. It can have many different symptoms and complications. Alot of people can't understand that you can feel good one d...
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Dee
Diagnosed at 28
Lupus affects everyone very differently. It is difficult to diagnose and therefore many doctors may not find it and treat it properly. There are so many odd sympt...
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Linda
Diagnosed at 46
That it gets very depressing at times, especially when your in alot of pain!
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Cynthia
Diagnosed at 26
Lupus hurts but we need to be strong to fight back and our family and friends support is very important to keep us strong!!!
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Jill
Diagnosed at 44
I experienced more than 10 years of worsening disease, & exams by numerous doctors before our new Family Practice MD told me that my symptoms sounded like lupus & d...
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Moore4Cure
Diagnosed at 36
Lupus affects everyone differently. If I had a dime for every person who has approached me with a remedy or non-remedy (no steroids) I'd be a rich woman. Every indi...
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rk
Supporter
Dont give up.....I wish you ALL well !
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b2bak218
Diagnosed at 28
A person just by looking at you cannot tell you have an chronic illness, therefore don't assume just because she/he looks great that person living with lupus is ALW...
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wanda
Diagnosed at 42
I my name is Wanda and I was first diagnosed with Lupus in 1994. I would like to let others know first of all not to give up! There are so many people, support gro...
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Vanessa
Diagnosed at 42
Although I may look healthy on the outside, nothing could be farther from the truth. This disease causes such inner turmoil that is not noticeable to the naked eye,...
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Kmurphy
Diagnosed at 16
Lupus is a life threatening disease that causes pain for the patient and the care takers every day.
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KStrope
Supporter
This has inpacte every part of my life.It also effects my family and friends.
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Sylvia
Diagnosed at 31
It affects people of all ages and is not always visible!
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Butterfly
Supporter
Lupus sucks.
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LAPDSETH
Diagnosed at 45
It took 5 years for me to find a doctor to listen to me get diagnosed.
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Yamichic
Supporter
That even though you are functioning every day ...every day you feel horrible....I explain to my friends that it feels like when you have the flu...how you want to ...
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kristen
Diagnosed at 28
I want people to know that when you are diagnosed with Lupus, it does not mean you are at death's door. Most people with Lupus, such as me, can live a full, relativ...
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Chet
Diagnosed at 48
You never know what kind of day it will be until you wake up that morning. Lupus makes it impossible to make plans. some days you are so weak or in pain and all you...
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Danielle
Diagnosed at 21
When you look at me I dont look sick but I am very sick inside! Everyday is a bad for people with lupus and just because we look fine and healty doesnt mean thats t...
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jules' mom
Supporter
It is a relentless and unpredictable disease and breaks our heater to watch our daughter struggle day in and day out with this.
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sweetsue
Diagnosed at 53
One of the most important things is that a caregiver needs to understand the fatigue and the pain that is experieced by a lupus sufferer sometimes it may not be vis...
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Laurie S
Diagnosed at 38
Understand that people with Lupus do as much as they can without complaining. If we complained about ALL of the aches and pains and issues we would never shut up! W...
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Marlie
Diagnosed at 37
Lupus not only effects you but, it effects your family and friends. Your every day life isn't the same as it used to be. Your job isn't always as easy as it could...
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Mabel
Diagnosed at 13
Because its a disease that every is growing and still there's many people that don't know about lupus
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Candy
Diagnosed at 28
There isn’t a part of my life that Lupus has not affected. The major part of it is the fatigue and the fact that I cant do what I want. Everything revolves around ...
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Sharon P
Diagnosed at 38
Lupus is a very difficult disease to live with. It is a disease which is very hard to understand by people who do not have it. This disease has caused more emotiona...
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Joelle
Diagnosed at 40
I am newly diagnosed..I want people to know that people with Lupus may not always look sick but everyday we fight to be able to do what healthy people dont think ...
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KoCo
Diagnosed at 21
Lupus is easy to diagnose but most people aren’t even aware they have it. I was diagnosed with Lupus by my GYN its strange how a little blood test was the answer to...
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Smile
Diagnosed at 29
Lupus is a very painful disease with many faces. Lupus can cause so much damage to your body because you don't know what to look for.
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Ria
Diagnosed at 45
new to this
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