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North Carolina

LFA, North Carolina Chapter
(704) 716-5640

Denise M.
Diagnosed at 54
i am in pain all off the time.
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Jackson325
Diagnosed at 27
Do not underestimate it!
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Sylvia
Diagnosed at 26
Lupus is a great imitator. Lupus can take hold of your life and hold you hostage, if you allow it. My favorite saying is "I have Lupus, but it does not have me". On...
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Phoenix53
Diagnosed at 52
Doctors very uneducated/apathetic. GP claimed Lupus was his specialty. Spent little intern time with Rheumatologist years ago; Diagnosis is by entire medical histor...
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Nicole
Diagnosed at 30
I was diagnosed with Lupus/SLE after months of severe joint pain, butterfly rashes, & fatigue. It came after an initial diagnosis of Antiphospholipid Syndrome, a bl...
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Ashley
Diagnosed at 24
Only because we say we have lupus does not mean we "have" to look sick!
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cynthia
Diagnosed at 32
lupus is not in your head or a myth. it's a day to day battle. it is a challenge for everyone including the families. you have good days and bad days. one day at a ...
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Catrece
Diagnosed at 41
That it is the great imitator and that it can wear you down physically and mentally, and weigh heavily on your love one, Husband and children.
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SWChilders
Diagnosed at 27
that just becausee we look ok doesnt mean we feel ok
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Doris
Diagnosed at 43
SLE has overlapping diseases. The out-of-pocket expense for medications is overwhelming, as is supplemental insurance for Medicare recipients under the age of 62. ...
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wljylezk
Diagnosed at mpi
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Tanya
Supporter
That lupus is a real disease. It effects you emotionally.I have the skin part of lupus and it gtches so bad, makes you want to dig out your skin. The doc told me th...
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Ouida
Diagnosed at 32
Lupus symptoms can mimic so many other things, so if you are noticing some differences in your body, go and get checked. Women are primarily affected by this dise...
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MelissaM
Diagnosed at 23
I was diagnosed with Lupus after a large amount of tests finally came together.My life has changed completely . Having Lupus has however made me a much stronger, mo...
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Jfletcher
Diagnosed at 42
I went to several doctors for over 4 years when I finally was diagnosed my Ana count as 1.860 . I felt tired, lots of anxiety and depression,stress . I had cloudy t...
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LOLA
Diagnosed at 52
I HAVE REWRITTEN THIS 4 TIMES, WHAT I WANT YOU TO KNOW IS THAT I MAY LOOK FINE ON THE OUTSIDE, BUT ON THE INSIDE I AM NOT FINE,,I GET CONFUSED AT TIMES WITH THINGS ...
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Charlotte
Diagnosed at 23
That it is a terrible disease. Don't let it control you..You have to control it!!!
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Jbh
Diagnosed at 50
I had been feeling terrible and in my gut I knew I had lupus, my problem was trying to get the dr. To test and when the results came back I wasn't surprised. Being ...
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Tabbatha
Diagnosed at 35
Lupus in not the end of the world or living. One thing I have learned is to continually educate myself and others as it is so much to learn. I live by the phrase, "...
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busdrivr
Diagnosed at 59
Lupus is a cruel mystery disease for the reason you never know what each day will bring. One day you're dealing with bad bloodwork, kidney problems or the next your...
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Fenicha Gr
Supporter
This thing LUPUS attacks everyone differently...many people go misdiagnosed...because #1 a doctor dismisses there symptoms or complaint. Do not be a victim of this...
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KD
Diagnosed at 32
When Lupus affects the skin it can be painful and disfiguring. Lupus can cause inflammation, itching, blistering, peeling, scarring, and discoloration of the skin. ...
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Ebony J.
Diagnosed at 25
Lupus is a devastating disease that instantly changes your life forever. Each day is always different almost like reaching your hand into a candy jar and wondering ...
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Barbara H
Supporter
Why I Put on Purple When I was first diagnosed with lupus, I didn't know or understand what it was. My hair was falling out, my skin began turning darker in spot...
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amyranae
Diagnosed at 16
Lupus steals!
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Kathleen
Supporter
If others could actually see what Lupus sufferers feel, there would be little need for awareness. As this is not the case, I often feel like I must explain, justify...
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Kim
Supporter
Lupus isn't something you can see, but that doesn't mean it isn't there. Lupus is a quiet disease. There are times when it makes the person affected with it seem ...
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Ashlee
Diagnosed at 18
I would like young teens to hear my story being a teenage young women living with Lupus is hard not having anyone to talk to about it is hard. For a long time i fel...
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terry
Diagnosed at 44
It takes too long to diagnose, up to many years - Doctors accuse you of being crazy - You're friends, family and co-workers think you are putting on - Everyone says...
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Booklover
Diagnosed at 16
Lupus is an autoimmune disease, it's not like Aids or Cancer. It's a disease that makes your body attack it'self instead of protecting itself.
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fite4lupus
Supporter
Lupus is a disease that can live inside u and wait for the right time flare up and it can shut down your entire body. This disease is a disease u can have and never...
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Velicia
Diagnosed at 25
Being diagnosed does NOT mean your life is over!!!!!!!!! It's better to know than not to know.
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C issy
Supporter
We need your support!!
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Busdrivr
Diagnosed at 57
Lupus is a very depressing disease.You have no idea how the next day in your life will be. You live life to the fullest each and every day.
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Leslie
Diagnosed at 20
Lupus is a chronic autoimmune disease that leads to inflammation and tissue damage to virtually any organ in the body, including the heart, lungs, brain, blood, kid...
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maria3442
Diagnosed at 27
It is debilitating-relentless and very difficult for others to understand.
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jfletcher
Diagnosed at 40
Lupus is a very bad sickness. Your entire life changes as you know it. There is not one day you are not in pain. I mean more pain all over the entire body joints sk...
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Tiffany
Supporter
It is a disease. It does affect you. There are good days and bad days. Lupus doesn't make you contagious or a bad person or someone to avoid because you dont know w...
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Charlene
Supporter
It is a disease. It does affect you. There are good days and bad days. But it doesnt make you contagious or a bad person or someone to avoid because you dont know w...
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Vanessa
Diagnosed at 56
Hello I'm Vanessa Allison and I want everyone to know that I have Skin Lupus. It's like regular Lupus except it attacks only the skin. Everyone says "oh only the ...
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Jackie
Diagnosed at 37
Lupus is a family disease...meaning it affects everyone in the family....Husbands/Wives have to pick up the slack when we are having bad days, Kids have to understa...
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Christy
Diagnosed at 39
Lupus is a daily challenge. It is life altering and requires you to make continues adjustments to your life and daily schedule. The phrase "I don't feel good" takes...
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Chuck
Diagnosed at 31
First it is not just a womens disease. Men also suffer. Also we are not contagious. We still need friends and their support. Please ask us or do the research about ...
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Tee-Tee Ba
Supporter
I want people to know that lupus does not mean the end to anything.
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D Marie
Supporter
Lupus is a devastating disease with no cure. We need more awareness and understanding about Lupus The doctors need more understanding and awareness as well Listen!!...
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dawna
Supporter
You may not look sick but that doesn't mean you aren't. Always stay positive and don't let it define your life!
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generice
Supporter
My wife is a 35 year old Caucasian woman. She was diagnosed with Lupus almost 2 years ago. It's not just "other races", older people, unhealthy/overweight people....
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Lisa
Diagnosed at 27
Lupus affects men, women, & children of all ages & races, with about 90% being women. Lupus is a cronic inflammatory & sometimes disabling & fatal disease. It can ...
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Shellee
Diagnosed at 16
Lupus is a horrible disease to live with but it doesn't have to mean your life is over. It is painful and exhausting but beautiful too. I would have never known my ...
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Megan
Diagnosed at 23
I live with lupus everyday and I battle one flare at a time. I look forward to days when playing with my kids are pure fun and not coupled with pain,rashes,and enou...
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Dana
Supporter
Lupus beats up my Daughter daily.... Lupus hurts me by watching her suffer.... Lupus brings stress to our family to support and take care of her.... Lupus is Inv...
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Nic77727
Diagnosed at 29
That there is no cure!
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Tammy
Diagnosed at 43
I have just been recently diagnosed and I am still learning about Lupus myself. There is something new everyday that occurs that I have to stop and say "is this Lup...
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Debbie
Diagnosed at 43
Lupus is a game changer. Each person with lupus will encounter a myriad of symptoms, and they can be different every time. The hardest obstacle is not being the p...
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Natasha
Diagnosed at 29
It's not a myth nor an excuse. Lupus has no sight or sense of feeling.
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Jess
Supporter
Those living with lupus might not look like they are fighting a battle, but every day is a struggle.
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Christy H.
Diagnosed at 30
Lupus is not a death sentence, no one has an expiration date. I deal with the pain but it doesn't define my weakness, it enhances my strengths.
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Kimberly
Supporter
Lupus is a disease where your own body attacks itself. It is very hard to diagnose and even harder to treat. I spent four months in the hospital, 2 months in a medi...
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EmilyB
Diagnosed at 29
I will conquer lupus, it will not conquer me!
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Kelly
Supporter
I am the daughter of the most wonderful mother who has lupus. I have been there with her from day 1 when she was told she has Lupus. Been there when she could not g...
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bonnie
Diagnosed at 24
Get educated about lupus whether you have it or someone you know have it. Get all the info you can on it and study it.Get all family members and close friends invol...
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Barbi Manc
Diagnosed at 28
SYSTEMIC LUPUS ERYTHEMATOSUS is a chronic, debilitating, autoimmune disease. I was diagnosed at age 28 and was told I could live possibly 7 years. Here it is 4 1/2 ...
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teecee
Diagnosed at 26
I am not sure. I don't know a lot about it.
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Vernita
Diagnosed at 19
Lupus is a just a bump in the road and for me many bumps. You really have to have a strong mind and don't look at it as a set back in your life. All the goals and a...
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Cami
Diagnosed at 19
Being diagnosed with lupus can be scarey. It feels like a loss and I dont think it's uncommon to spiral into the stages of grief. I did but I feel it was necessary....
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Eunice
Diagnosed at 22
That there is life after being diagnosed, you make adjustments but you keep going.
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harolCraig
Diagnosed at 39
women and men have lupus.. most people think only women had lupus
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Danielle
Supporter
I pushed myself to finish college in 4 years and did it with honors. Now I am about to graduate law school 3 years later - lupus isn't a mountain that's impossible ...
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wrightrs
Diagnosed at 30
find a cure
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Jamie
Diagnosed at 24
Lupus can be tough to live with most of the time. Although it can be a burden, it never ceases to help you realize the better things in life. You become more apprec...
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Abbygirl
Diagnosed at 27
That you need to be diagnosed early in this disease becauae if not your organs are going to be ruined so keep going and looking for someone that won't just think it...
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PJ Morton
Diagnosed at 38
It took 3 years, 5 positive blood tests, and no butterfly rash before I was diagnosed. I'm on meds so I can now tell my bad days from my good days. It's important...
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Wrightrs
Diagnosed at 30
FIND A CURE !!!
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Janet
Diagnosed at 48
I want people to become more aware of Lupus and the affect that it has on people and those around them. Those with Lupus don't know from day to day how they will fe...
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Jasmin S.
Diagnosed at 20
You can't look at me and see that I have it. It hurts. It has nothing to do with werewolves. It is hard to deal with emotionally when you are diagnosed at a young a...
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tasha05
Diagnosed at 24
Lupus is not something to fear; as if your life is over and you can not fulfill your dreams. I was recently diagnosed with Lupus so each and every day is a like me ...
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Tony
Diagnosed at 56
Lupus has affected my joints for many years, even though I was only diagnosed recently. The pain of Lupus makes it hard to do everyday tasks and it seems that use o...
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Lizzie
Diagnosed at 20
That I'm still going to do what I can, when I can, while I can. Lupus has drastically changed how I chose and am able to live my life. It has taken away options tha...
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Love
Diagnosed at 19
Lupus changed my life compleatly to the point that I honestly felt like I was losing the most important part of life which was myself.
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Boo
Diagnosed at 33
I have had people look at me and say" but you don't look sick, so you can't be that sick" So I think that what I'd like others to know is, just because someone does...
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pab072879
Diagnosed at 56
How debilitating it can be.......the fatigue, tiredness, numbness and muscle aches.
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Carolyn
Supporter
This disease is a game-changer for all those lives that it affects. It is devastating and desperately needs more attention. Lupus affects people of all walks of lif...
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Karen
Diagnosed at 14
If you put 10 people in a room who have been diagnosed with lupus, you will find 10 very different stories. Lupus can impact virtually any organ in your body. Lup...
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Deb
Supporter
Stay active and you will feel much better!
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LupieLou
Diagnosed at 49
Its not something you can catch from me. Do not be afraid.
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TONYA
Supporter
You never know who lupus has intimately affected or is affecting when you meet someone. Don't assume that it is something fake or an excuse for the person. Share a ...
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Aliria
Diagnosed at 24
Lupus is a chronic disease hard to live with. Unlike other illness people would know when you are not feeling good, but with Lupus they can't see it, so sometimes ...
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KBrooks
Supporter
Lupus is something that takes time to adjust to, however you can choose to be victorious and determined to not let it overtake your will to live. It requires everyo...
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Prayingmom
Diagnosed at 26
What I want most for other people to know is that no matter what the person appears on the outside, no matter how much they smile or go on about their lives, if the...
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Gloria
Diagnosed at 39
There is no cure, just treatment. Medications can bring on so many other side effects. Personal care is a must, liver test are a must. Finding out lupus numbers wit...
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Swelo
Supporter
Lupus is a real disease. We aren't hypochondriacs the pain and the fatigue are real! We wish we didn't have this disease. Lupus is one that people have to believe y...
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dirtbunny
Diagnosed at 34
That just because we look okay on the outside, The inside is all going to hell. Don't forget the random fatique, usally when you least expect.
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Barkley
Supporter
Lupus is a dibilitating illness that has wears down the toughest of individuals. We must continue the research to find a cure.
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Rhonda
Diagnosed at 40
That because someone looks okay,it doesn't mean they feel okay.People with lupus have a hard time learning to slow down,listen to their body,& learn what works and ...
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sigmon777
Supporter
My 29 year old son has lupus nephritis, a vicious disease, and is on the kidney transplant list at Chapel Hill and Wake Forest. He struggles every day to get up and...
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Tomaka
Diagnosed at 22
I would like to people to know that alot of people are living with Lupus & don't look sick at all. Lupus is not contagious & more than half of the people that are f...
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Diane K
Supporter
It's one of the most difficult challenges I've ever faced.
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misha
Diagnosed at 33
Lupus is unperdictable. Im thankful for everyday the Lord gives me.
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Angela
Diagnosed at 30
Lupus is not a death sentence.
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Wendy
Supporter
Lupus affects everyone differently. There are no predictable stages. Treatment plans need to be customized, modified and changed over time. Thankfully, a new dru...
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BlueSkies
Diagnosed at 51
It reaches far beyond the life of the patient affecting close relatives and friends of the patient.
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acg0428
Diagnosed at 14
Lupus is an Autoimmune disease that can copy cat other diseases which makes it harder to diagnose correctly!
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Ashley E.
Diagnosed at 20
I just want awareness. It's 2011 and I run into many people who never even heard of the word Lupus. More awareness comes more researches, then better medications, a...
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kitb
Diagnosed at 45
Even though I look fine, there are days that I'm so tired that I have a hard time getting through the day.
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NIKKI
Diagnosed at 25
LUPUS IS A DISEASE THAT IS ATTACKING PEOPLE EVERY DAY. IT DOESN'T CARE WHAT COLOR OR WHAT TYPE OF PERSON YOU ARE. IT ATTACK PEOPLE IN DIFFERENT WAYS, SO YOU WOULD N...
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Kimberly
Supporter
Lupus is a silent killer. Damaging vital organs such as the heart and kidneys. There is no cure, but there is hope if more money is allocated for Lupus research.
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Courtney R
Diagnosed at 31
Lupus is very real and its effects can be life alerting. It is not a contagious disease but its ailments affects not only the sufferer but supporters as well. Muc...
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Patty Dunn
Diagnosed at 28
You can let lupus manage you and your family or you can put together a team to help you get through your lupus journey. The loving support of family and friends, go...
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Kristy
Supporter
Lupus is a disease that has many shapes and forms, but you can live your life with Lupus and not let it live your life!! it can be managed through careful diet and ...
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AStarr
Supporter
That it's not a death sentence. Life continues to go on and patience & perserverance are a must. Stay positive and keep God in your life.
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Chris
Supporter
There is hope!
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Nichole
Diagnosed at 15
Just because you cant see my disease doesn't mean that it doesn't affect me in many different ways.
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Wendy
Diagnosed at 30
Lupus is very unpredictable. Something as simple as going out in the sun can trigger a lupus flare. A lupus flare to me is like having the worst flu ever. A fl...
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Nieshia
Diagnosed at 19
Lupus is not a death sentence, n just another way of life for many. I have learned how to cope and help those who love me to cope but not hinder my life or theirs.
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Christine
Supporter
That most likely someone they know has lupus. That it is a devastating disease, but there is hope, and that is why the LFA exists.
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David
Diagnosed at 38
it takes alot out of you and makes you know want to be messed with ,i have to avoid the sun and take a bunch of meds all the time lupus sucks
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Jennie
Diagnosed at 54
I want others to know that Lupus is very unpredictable from person to person. It effects each person differently, and the severity of how it effects that person can...
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aimsgirl16
Diagnosed at 19
How devistating this diseasse can be! We need as much awarness to help fight for a cure!
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KarenP
Supporter
Lupus can impact you in so many ways and impact so many parts of your life. I've had lupus impact my skin, my lungs, and now my central nervous system.
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tweetyh
Supporter
Lupus impacts not only your life but everyone in your life. I may not look sick, but I am sick. What bothers me the most was the lack of support from my past employ...
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