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Ohio

LFA, Greater Ohio Chapter
(440) 717-0183

astriakoi
Diagnosed at 19
It comes unexpectedly. It started with itching and escalated from there. It brings you down and you see dark days but it helps you appreciate the good days a lot. I...
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Juley
Diagnosed at 20
Lupus is a life-threatening disease and just because someone with it may "look" okay, does not mean they are. Our bodies are constantly in a battle, which means eve...
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Debbie
Diagnosed at 57
That it affects every day life. You will never be the person that you were before.just have to have a positive out look.
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Leslie
Diagnosed at 43
I have had a tough year with fighting to save my kidneys (stage 3), rashes, and the daily issues associated with this bizarre disease. I have been blessed to still ...
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kiara
Diagnosed at 19
I would like people to understand that you are not alone and I'm here to tell you that I have lupus and its in my life and yes,I have to deal with it cause its my l...
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Steph
Diagnosed at 13
Lupus is a life alternating illness but it doesn't stop me from living
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Rainyjane
Diagnosed at 21
Lupus affects EVERY aspect of life. When I was diagnosed, I was told I had 2 years to live. That was 38 years ago. Aa I get older, complications have increased -- f...
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Nada
Diagnosed at 26
Lupus is like a chamillion. It changes with each person. The first time my body showed signs of lupus was when I was around 16. It took 10 yrs and many doctors to f...
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els
Diagnosed at 41
Life becomes hard but you can survive and just make the best of it.
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Amber Dawn
Diagnosed at 29
Lupus is a debilitating disease where you look "normal" on the outside while your inside is fighting a war against your own body.
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Rhonda
Diagnosed at 43
I once saw a sign at the doctors office that said...She looks beautiful on the outside but ugly on the inside. That describes lupus to me. People tell me I don't lo...
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Simone
Diagnosed at 23
Lupus is a life changing disease that can take you by surprise day by day. You never know if you will be in pain, suffering from debilitating fatigue or if some ot...
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Heather
Diagnosed at 19
There are good days, there are bad days and then there are days where you are convinced you've entered the gates of hell. Many don't realize that Lupus affects eve...
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Christina
Diagnosed at 28
The symptoms of Lupus mimic so many othe conditions that patients often seek the wrong types of doctors for each condition, prolonging suffering as well as proper d...
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Jewel
Diagnosed at 36
Lupus is a cruel, debilitating disease and it has no boundaries. We don't share our stories for sympathy, we share them for awareness. So, don't treat me different...
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Sarah0527
Diagnosed at 35
Lupus is a scary reality I live with everyday. I was recently diagnosed, and am just learning how to read the signs my body is sending. I may look okay on the out...
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Juanita
Diagnosed at 36
I want others to know that even though it doesn't look like people with Lupus are sick. We are suffering inside and out. And it affects our families and friends dee...
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Le'Ana
Supporter
Lupus is an incurable disease. Many people get the disease young and others are severely injured or killed by this horrible disease. Lets donate to find a cure and ...
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Cheryl
Diagnosed at 22
Lupus is a devious and life threatening disease. I have seen others living with attack worse than my body. This disease has taken my sister's life and almost my l...
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Lacey
Diagnosed at 14
Lupus is a very unpredictable disease that causes a person living with lupus to have to sacrifice and make changes to their everyday lives. With all the limitations...
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CoreyCahil
Diagnosed at 27
Lupus is tough on everyone, not just the person living with the disease but for the loved ones that support them. We live for the good days and struggle through th...
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Michell
Supporter
Lupus is a scary, devious disease. Even when you think you're ok, you've got it under control, it's doing damage in the background. As Survivors, we learn to ignore...
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Michell
Diagnosed at 9
Lupus is a scary, devious disease. Even when you think you're ok, you've got it under control, it's doing damage in the background. As Survivors, we learn to ignore...
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Shawneen
Diagnosed at 30
THAT IT DOESN'T HAVE TO STOP YOUR LIFE. YOU CAN'T LET IT TAKE YOU DOWN. GOD IS GREAT THAN ANY DISEASE.
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Maggie6
Diagnosed at 19
Lupus is a very complex disease and affects every person in a different way. A very important thing to know is to be patient and never give up.
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sharonmize
Diagnosed at 35
this disease has greatly impacted my life. i went thru alot of useless diagnoses before i got the right one. and then i developed very serious problems...loosing a ...
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Millie Y.
Diagnosed at 53
If you are living with Lupus, you need to learn to control your life and health--don't let Lupus control it. You will learn what you can and cannot do. Sometimes ...
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Rhonda
Diagnosed at 13
SLE is a dangerous disease I've had it for years. The only organs that I left not touched by this disease is my liver and kidneys yet. That's the key word "YET!" I'...
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Shannon
Diagnosed at 36
Lupus is a disease that can mess with your kidneys real bad and it will make you real tired plus make your joints hurt somedays worse then others.
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Michelle
Diagnosed at 32
That it can be a painful illness but it's not a death sentence.
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rachel
Diagnosed at 23
From the outside i look great and healthy, but on the inside i feel like i am being eaten alive. my body aches in ways you could not imagine. just doing normal dail...
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Jei
Diagnosed at 18
Living with Lupus is probably the hardest thing I'll ever have to do in life. And it just gets harder the longer you have it. But I want others to know that people ...
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Nancy
Diagnosed at 41
I may look just fine, but my smile hides the pain and frustration of an illness so few understand.
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Angel
Diagnosed at 41
As much as possible! Until i was diagnosed i had heard of lupus but really didn't know what it was! I am still leaning daily!
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Melissa
Diagnosed at 27
This can't be said enough. Just because I don't LOOK sick, doesn't mean that I'm not. I am always tired, I am anemic, often times my joints ache, I can't sit out in...
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Jewell08
Diagnosed at 18
What can you say about Lupus that hasn"t already been said. It's up to each and everyone of us diagnosed with this disease to be as educated and proactive about ou...
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Rhonda
Diagnosed at 40
Lupus is complicated disease, since no 2 cases are exactly the same. Most people look perfectly healthy, but are hiding the pain and fatique and pushing forward.
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Dwalters
Supporter
Very serious and needs to b wide spread knowledge
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Kara
Supporter
It will change the way you walk,talk,think and even treat other people.
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Roger
Supporter
Lupus is not for the weak. It is a disease that affects many different organs of the body. It is a silent disease that creeps into your life.
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Roger
Supporter
Lupus is not for the weak. It is a disease that affects many different organs of the body. It is a silent disease that creeps into your life.
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ls65ohio
Diagnosed at 65
The arthritis doctor I go to thought I had rheumatoid arthritis and ran blood work. It came back with the Lupus diagnois and said she ran more extensive testing to ...
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Kathleen
Diagnosed at 39
SLE affects EVERY aspect of life.
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LaTonia
Supporter
Lupus is a silent disease felt deep within.
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Courtney
Diagnosed at 24
Most of us with Lupus look completely fine, but we are wearing a mask to portray that we are fine. Lupus effects each person differently. 5 out of 7 days I usuall...
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amanda
Diagnosed at 12
its not a sickness, its a lifestyle. we can do almost everything you can do, just in a different way. we will have our good days and are bad days. we will just appr...
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Peachie
Diagnosed at 34
Lupus is an auto-immune disease that looks and feels different in every person.
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LaToya
Diagnosed at 21
Lupus can be scary because there are so many variables of it. It is unique because there are no like cases (so I was told when diagnosed). knowing your body and ...
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Kathy
Diagnosed at 45
You can't see anything different about me, I look fine,and I always have on a big smile,so what is the problem? Lupus is so sneaky. It attacks and I am down for the...
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Matt
Diagnosed at 23
I have Lived with SLE for awhile, and I have not let it own me. I have tryed to stayed informed with LUPUS and all that is involved since being Diagnosed which is w...
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Tammy
Diagnosed at 25
Lupus is a manageable disease but you have to have a positive outlook! Find a reliable doctor you can relate to & be honest with. You can be having a horrible day p...
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Tracee23
Diagnosed at 31
Lupus is a terrible disease and most lupus patients are suffering more than they want to admit. Although many of us look well, we are not and it is hard to hear all...
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DLJ
Diagnosed at 51
People are very judgemental and have been very mean towards me and they know very little about me! This disease can be devastating to a person and to their body. I ...
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LFAANGEL
Supporter
I was misdiagnoised for twenty years. It was a lonely, miserable and misunderstood journey. Through the help of the Lupus Foundation of America, I was able to take ...
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Chellytin
Diagnosed at 55
I do not know nothing about Lupus
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cheryl pri
Supporter
I have a serious case of sle that has caused losing organs, 4 years of dailysis, open heart surgery, serious joint pain, bone loss, hair loss, problems with weight ...
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Ike da 2nd
Diagnosed at 48
Just because I don't look sick doesn't mean I'm not. I've heard it said that Lupus is the look good feel bad disease and I agree with statement 100 percent.
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Manuel
Diagnosed at 33
I was diagnosed 13 years ago and only more recently has my life been adversely impacted due to limiting the sun exposure. As an active man, I can't do many things...
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Tiffany T
Diagnosed at 27
The more people that know about Lupus the more help and research that can go to helping those have relief from all of the pain that Lupus causes.
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Britt
Diagnosed at 18
There's no cure. No matter how good or bad a day we are having, our lupus is still there. Either up in front, or lingering in the backround.
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Jamie
Diagnosed at 17
Lupus is a very serious illness and can be dramatically life altering!
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LaVerne
Diagnosed at 45
Lupus is a life changing thing,you have to learn how to enjoy the good days and deal with the bad days.
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Linda
Diagnosed at 21
Attitude is most important!! I have been living with lupus for 42 years now. Fortunately I was diagnosed early and have had mainly aspirin therapy only. I contin...
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April
Diagnosed at 22
That lupus is a hard illness to deal with theres so many different side affects and hopefully with prayer there will be cure so no one else will have to go through ...
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Linda
Diagnosed at 43
I've been in remission for eight years due to quick diagnosis.
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tasha1556
Diagnosed at 35
Lupus can wear you down. Make sure to get the proper amount of rest and wear sunscreen. SPF 110 is best. No burn.
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linda degr
Diagnosed at 48
there is always help available.
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Lynndees
Diagnosed at 30
Awareness. . .
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Janer
Diagnosed at 54
I had been sick for 6 yrs prior to a final diagnosis and it takes forever to get the right doctor to view you for your symptoms and not your actual blood tests. L...
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Rachel
Diagnosed at 27
Please know that lupus has many faces. One day it may hurt and ache, while the next its just extremly tired. It takes a very patient person to deal with a person wi...
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Annette Ja
Diagnosed at 40
This is a terrible disease to live with. The worst part about it is how it is silent. Meaning NO ONE out there understands how you look just fine but say you are hu...
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NickiReed
Supporter
I want to help spread the awareness of the disease. Most people don't know much about it or even know that Lupus exists. I also want to inform people of the serious...
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Mercedes12
Diagnosed at 16
Just because you have lupus you shouldn't be any less important in the world. One of. My teachers said to me that I wasn't normal because I have lupus but I straigh...
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Sandy
Supporter
Lupus is a very painful disease to have to live with. Lupus is a life changing disease for the person who has it. Don't give into the disease. Always tell yourself ...
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LoriC
Diagnosed at 40
Listen to your body. Get rest when you need it. But, stay as active as you can possibly be! Always remember to advocate for yourself!
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Crystal
Diagnosed at 23
I have been diagnosed not long ago and it seems like it has all been downhill from there. It is not easy living with lupus and if the lupus isnt bad enough the medi...
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jaimielynn
Supporter
Now 23, these first few years have been the most diffucult. Learning the ins and outs, many many doctors visits at the cleveland clinic, and learning through my aun...
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Yvonne
Supporter
Things aren't always as it seems and Lupus affects each individual diffeently. Most times I look well an feel horrible because it doen't affect my appearance drasti...
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gypzgyrl
Supporter
At 16 I watched as my little girl(Sable) was diagnosed with Lupus. Bless her dermatologist who saw it and all of her Doctors & healthcare pros that have treated her...
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Trish
Diagnosed at 51
The main aspect people need to know is about our inability to fight off illness at a normal rate of speed. If you are sick, stay away from those with Lupus, have a ...
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morobison
Diagnosed at 37
Lupus and the medicines can have effects on you brain. It can cause you to lose a big part of who you were! I have Sjogrens too; these two have caused my autonomic...
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Dawnie
Diagnosed at 30
Lupus has affective many of my relatives, and friends; there are days when you just can't get out of bed, and if you do get out of bed, you cherish them moments. Lo...
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AliM
Diagnosed at 30
The hardest part of living with lupus.... people don't understand how difficult living with this disease is because "you don't look sick" or "you seemed fine and ho...
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Martha
Diagnosed at 23
Lupus is a "Invisible" illnes. In other words, you don't always look as sick as you are.
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KathiRR
Diagnosed at 41
We may look well but that does NOT mean we feel well. Making plans is almost impossible, as we may be fine one moment & feel dreadful the next. When we cancel plan...
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Sweetybaby
Diagnosed at 40
We are not contagious when you see the butterfly mark on our face. Just because you can't see what's wrong doesn't mean we aren't in pain.
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Greg
Diagnosed at 48
Enjoy life to its fullest and don't dwell on the pain
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Angelina
Diagnosed at 29
You can look healthy and still be sick. You can be experiencing a flare but look fine.
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Erica
Diagnosed at 22
When I was first diagnosed I had no clue what Lupus was and thought my doctor was just making something up to explain the extreme hair loss, chronic fatigue, muscle...
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AndrasMom
Supporter
That event tho you might not look sick, feel sick or be sick physically its very serious! I wasn't ever sick and bam, i was rush into heart surgery and told i have ...
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Andrea
Diagnosed at 21
Its a terrible thing to live with and we are desperate for a CURE
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Triciad
Diagnosed at 27
Support those you love, be there for them listen to them.
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Hope
Supporter
When you have Lupus, you may not look sick, but you have good and bad days. I am going to keep fighting!
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Michelle
Diagnosed at 20
That it can be controlled through your diet. For those of you who are living with lupus and have not changed your diet to a natural diet, do it! It completely reli...
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Jenny
Diagnosed at 29
Lupus is not necessarilary a death sentence but it deeply affects your life physically. People think that your lazy always complaining and that you are not really ...
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Jenlynn
Diagnosed at 30
Despite many possible challenges this disease can bring to yoru life, it is best to look forward and live your life to the fullest! Do not get weighed down with anx...
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DebCoe
Diagnosed at 56
That just because you don't look sick doesn't mean you aren't hurting
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Fonda Reed
Diagnosed at 46
Lupus is a disease without a cure at this time,it knows no age, it can affect anyone at any time in there Life. It alters the way you live and needs more awarenesss...
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Gardenbug
Supporter
Lupus is controlling. Lupus knows how to hide behind other illnesses. Lupus dictates your day. Lupus does not discriminate between age or gender.
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CorveteDon
Diagnosed at 58
I lost control of my lower extremities to Lupus. I must use a walker, & catheters. I suffer intense pain due to nerve damage. Never suspected Lupus, I have annual p...
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Jackie
Supporter
To follow....
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