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Oklahoma

Lupus Foundation of America, Inc.
(888) 385-8787

nita
Diagnosed at 59
how hard it is living with lupus
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SMSwim
Diagnosed at 34
Lupus is a cruel and unforgiving disease!!! It is hard to diagnose because it's mimic's so many other illnesses. I have been hospitalized many times for serious thi...
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Roxanne
Diagnosed at 46
It is life changing.
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she60
Supporter
It's mysterious and people think it's all in your mind. BUT It's real. I've lost my spleen, several toes and last my job. God is good, I'm still hear by the Grace o...
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Valina
Supporter
I was told from blood test I had lupus. Then a doctor said no I could have a sister to lupus. I watched my Aunt go thru it when I was in my teens. She had it in her...
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Elizabeth
Diagnosed at 16
Although Lupus survivors may look "healthy" we are not. Many patients continue to develop a heavier disease that slowly shuts down their life. Simply getting dresse...
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Melissa
Diagnosed at 41
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LivinFaith
Diagnosed at 31
Dear Lupus my Chronic Illness, I have been avoiding you hoping that you would go away, praying that it was a mistake or that I would wake up from this “Dream”. At...
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Cheryl
Diagnosed at 45
People need to understand that going to see a doctor for every symptom just isn't possible. If I say anything about not feeling well, friends suggest that I see a d...
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Cassie
Supporter
Although it may seem impossible, we can live with this disease. We can do our best to control it and not let it control us. There are days that I have to repeat thi...
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Amanda
Diagnosed at 19
Lupus is a very cruel and mysterious disease. It can rob you of your health not only physically but mentally and emotionally. Without the lord above and very suppor...
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Amy bell
Diagnosed at 35
Lupus is very cruel and sneaky! Just about the time you think you have it figured out and understood, it throws you a curve! Try to listen to your body and pay att...
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Tiffanie
Diagnosed at 21
Lupus is a continuos reminder that my strength comes from above.
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Laura
Diagnosed at 37
That it's an invisable illness and that 90% of lupus sufferers are women of African-American, Native-American decent.
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VickChick
Diagnosed at 31
Lupus is a very frustrating disease because it is so unpredictable. It is hard to plan things ahead of time because you just don't know how you will be feeling. Som...
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Dawkins
Diagnosed at 16
Lupus for a high school student is hard; teachers should know more about this disease.
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Poppy28
Supporter
Lupus is a very unpredictable disease. A person with lupus might be in remission when out of the blue the Wolf creeps up and bites in a life changing way. We know s...
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Tremia
Diagnosed at 34
Lupus is a very real disease. It is debilitating and life threatening. You never know when or how it is going to attack you.
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mrsteele
Diagnosed at 56
I believe the greatest challenge living with Lupus is that we "dont look ill".. Everyone you know "knows" someone with Lupus which automaticlaly makes them an auth...
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Mary
Diagnosed at 55
Lupus is a virtually invisible disease that is life-changing and can be life-threatening. People can live with a multitude of seemingly unrelated symptoms for years...
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Dana
Supporter
Lupus is a disease that turns your world as you know it upside down. It virtually affects every aspect of your life. I call it the "silent disease" due to the fact ...
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Faith
Diagnosed at 14
Lupus varies in intensity with each person. Please pay attention to all body symptoms. There are techniques you can use to slow down a flare. I handed out BED BU...
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Cassie
Diagnosed at 22
Lupus isnt contagious but its a pain to live with and u can only take things day by day. One day I'm ok and the next I can hardly move at all.
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Laura
Diagnosed at 35
Looking back at my life--I had suffered from Lupus flares since I was 15 but no one recognized the pattern of fatigue, general feeling of being sick, and fevers. I...
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crystals23
Diagnosed at 11
It is a life altering disease. But you can learn to live with it. I have support from family and friends.
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Anneka
Diagnosed at 32
Lupus is a devastating disease.
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Haley Town
Supporter
It impacts a lot more people than you know. It is also virtually impossible to recognize someone with Lupus. They look healthy on the outside, but the battle is occ...
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PRNCSCILLA
Diagnosed at 28
Lupus is a very inconvenient disease. You never know when you wake up if you are going to have a good day or a bad day. Some days are not that bad, but others can b...
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brandi
Diagnosed at 26
everyone with lupus needs a good support system...not someone to judge and say "well you dont look sick so get over it"....
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Mallory
Diagnosed at 23
That it's not just in our heads we really do hurt. The pain really affects everything in your life. We need to have others understand how we feel and to support us....
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butterfly2
Diagnosed at 37
In the Summer of 2010, my blood pressure was high, so we went to the doctor. The Doctor said it wasn't and ran some tests. A month later, he said that I could have ...
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Lucinda
Diagnosed at 43
I want people to educate them selves about Lupus, because someone you love may have it or you yourself may have Lupus. Don't be afraid to ask your doctor, "Could ...
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daddysgirl
Supporter
Lupus is a very degenerative disease that can either kill slowly and painfully or very rapidly and painfully. It puts a strain on the family dynamic that will eithe...
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Marci B
Supporter
It is destroying my whole life, Why even live if my life is going to be like this.I know you will never post my coments as they are not very positive. Some people w...
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Cindy G.
Diagnosed at 39
We're not hypochondriacs or attention seekers! Our pain is real and not imagined. Please don't treat us disrespectfully just because you can't see or feel the pain.
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supermama
Diagnosed at 17
Someone you know probably has Lupus. It is a quiet illness that slowly debilitates those affected by it. People that have Lupus often look normal but inside their b...
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ChristinaM
Diagnosed at 18
Its not visibly debilitating but the physical impact is enormous. I was told by my high school government teacher that I was just making up excuses as to why I was ...
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Samantha
Diagnosed at 15
it is an illness that is hard to live with but we are not going to get you sick it isnt like hiv or aids we where born with the genes
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Beadlady
Diagnosed at 47
Most people seem not to believe you could have problems because you don't look like it. The fatigue and pain is frustrating but can be managed to some degree. Took ...
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donjo03
Supporter
Very misunderstood illness. People wonder why you don't exercise more to lose the weight that you have gained from steriods and the extra eating because you eat to ...
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Robin Cuka
Diagnosed at 31
SLE can be a extremely difficult disease to live with. Even if you feel "ok" keep your doctors appoints. And don't get complacent about your disease. Lupus has its...
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Stehnee
Supporter
People living with lupus may look healthy at times but be suffering greatly with pain, fatigue, and other symptoms. People are surprised to find out I have lupus a...
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ShayK
Diagnosed at 16
That just because I don't look sick doesn't mean that I'm not. Stop trying to look and see sickness in me. It just might not be there that day but trust that its th...
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ChelseaK
Diagnosed at 20
I want people to know that Lupus is a life changing disease, and although we don't always look sick, we certainly are.
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jennamarie
Supporter
it is rough to deal with and live with at first but your family and friends will always be by your side and help you through it. you are never alone
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CJ
Diagnosed at 58
I was just diagnosed with Lupus last year but I have had a positive ANA since I was in my 30's and really had the symptoms for that long also so I feel I have had i...
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Shelly C
Supporter
ItEffects everything about you
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purplecraz
Supporter
That lupus attacks people differently. Lupus not only changes your life forever, it's a disease that effects family members emotions because they have to "live" wit...
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Bryn
Diagnosed at 35
Lupus lives with me on a daily basis. We need all the support we can get for a cure!
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teacher26
Diagnosed at 22
Just because someone with lupus doesn't look physically ill, doesn't mean they don't struggle with the symptoms daily. It's not all in our heads, and we're usually ...
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jnicole87
Diagnosed at 22
How life impacting it can be.
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Memeto4
Diagnosed at 42
Lupus is a life changing disease that affects the entire family. Although we may look fine we can be very, very sick. Please don't mistake our illness for laziness!...
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RaRa27
Diagnosed at 27
Some days are really good. Some days are really bad. With each new morning there is hope of a better day.
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Johnsosj27
Diagnosed at 35
I have lupus. This is a chronic disabiling disease. With lupus your immune system goes crazy & attacks your own body. It is chronic inflammation & it can attack ...
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Poppy29
Diagnosed at 44
I should have been diagnosed when I was 18. I have many wonderful people praying for me, but what I need is someone to help me clean my house. Or help me paint it s...
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