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Louw
Supporter
Lupus is a curse. My son diagnosed at 10 years old, he has nephritis, hypertension, osteoporosis, cholesterol, Gord,arthritis and above all has also a mental illne...
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Alicia
Supporter
Lupus is highly variable, and no two patients have the exact same set of symptoms. Nor do the symptoms stay consistent in one patient. Since it's an "invisible" con...
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STXMarsha
Diagnosed at 23
Diagnosed 40 years ago, but had it since I was 13. I'm still here and I have quality of life. I've had terrible flares with horrible pain & suffering. I was not e...
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Saggy69
Diagnosed at 43
Ever since the diagnosis,people misunderstood my pains and weakness, they say it's psychological and that it is not a sickness. I want them to understand that I may...
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Cecilia
Diagnosed at 12
Solo que la información sea objetiva y de cualquier tema posible, pero que ayude a los que tenemos lupus como a los que viven con nosotros.
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valiciasc
Diagnosed at 36
Be ready for anything and everything. I have a mass on my SI Joint, joint pains. It was a great doctor that noticed my ear, face, back, and hands.She encouraged me ...
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Carla A.
Supporter
Gostaria que fizessem e comentassem mais estudos sobre Lúpus em Homem
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lup(US)
Supporter
Lup(US) is indeed as much about the welfare of me, as it is about the "us," fellow women: wives, sisters and advocates and everyone in between.
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liagil22
Diagnosed at 46
I believe that I have almost since kid.   I was never diagnosed,   always treated me like depression.   I have lived my entire life with severe pain in all body,...
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Leonie Sma
Diagnosed at 23
People don't understand the tiredness and muscle soreness associated with Lupus. Most people will think that you are exaggerating when complaining about the pain. ...
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Christine
Supporter
People must know about Lupus, since it's deadly. They pretend like it's nothing, yet it's really important to support those who try to find a cure to this disease. ...
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Nicole
Supporter
It is devastating disease, it is hard on a person daily living. Coping is a mean issue, always tired and always wanting to give more, but at some point have to slo...
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Jess
Diagnosed at 23
SLE Lupus is a crippling, life-altering disease that changed my life forever! I was diagnosed 3 weeks ago but have known there was something 'not quite right' for m...
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Delia Moro
Diagnosed at 29
The sooner you get the diagnosis, the better will be your outcome with this disease. Always fight, but don't lose HOPE.
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Maria Simm
Diagnosed at 60
As a lupus sufferer I have found it important to be pro-active in my own health care. I have sought second opinions when I haven't been satisfied with the specialis...
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Elif
Diagnosed at 11
Living with this disease means a lot. I just want to say that the real definition of the word 'Survivor' is us! We deal with a huge serious disease that makes us so...
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Ariana
Diagnosed at 15
Lupus is an autoinmmune disease that not only affects every organ in your body, it changes your entire life as well as the life of closed ones. It is a painfull co...
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Laura
Diagnosed at 23
I got a very horrible second grade burn in my chest due to the sun (swimming pool), but everybody though I abuse from it. Few months later, I got an alopecia and I...
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Jimena
Diagnosed at 32
I am a mexican woman who lives with lupus. In my case was very hard to diagnose... Once the doctors knew what it was, the treatment started as well as the acceptanc...
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Liliana
Diagnosed at 46
Que se puede controlarlo, que se necesita mucha fuerza interior, que debemos conocer lo que es necesario, pues yo soy médica y saber "todo" del lupus, no me ayudó, ...
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Odra
Supporter
In 2012 I started with severe pain in the arms, hands, fingers and ankles was so much pain I could not sleep, no pain medication and calmed me pregunataba me I coul...
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Juliette
Diagnosed at 36
Lupus is painful.And scary. Silently hurting from inside,so others can't see. We're not just complaining. The pain,the fatigue,the fear of a flare up,this is very ...
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Lynn Tatto
Supporter
I want to know everything!! But specifically if at the moment I don't have specific symptoms, can they develop. I'm interested in the brain malfunctions and organ d...
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jaine
Diagnosed at 28
That it is cruel, soul wrenching, and wish I was dead, nothing that I have taken has worked... It's depressing, the weight gain from all the drugs digusts me, and...
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Jess
Diagnosed at 27
I want every one to know what lupus is because if it was a well known disease then maybe I would of been diagnosed earlier and there fore would of saved my kidneys....
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monica
Supporter
How do I prevent systemic lupus attacks the brain? how to handle sinrome Reynaud's and depression in my routines day?
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natalie
Diagnosed at 17
Lupus is a very bumpy road but you need to face it head on and not let it stand in your way no matter how hard it may hit you. You have lupus lupus does not have yo...
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ChristineC
Diagnosed at 11
It can be cured.
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Susan
Diagnosed at 40
I would like others to know that lupus can permeate all areas of your life and try to change all that you are but steadfast faith in god, in depth understanding of ...
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Marie
Diagnosed at 27
It's not a death sentence and doesn't mean you are condemned to a life with physical limitations. With good health management, a good support system and a positive...
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ylsej
Supporter
Tengo Lupus hace 3 años y cada dia es un poco mas dificil..mi hijo tambien tiene con Nefritis incluida..quiero conocer todo acerca de esto, he leido e investigado p...
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Niki
Diagnosed at 8
Lupus is a disease that you learn to live with. I was 8 years old when i was diagnosed with lupus and now I am 37. I have a normal life till now because I am caref...
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Tam
Supporter
as a parent who's child was diagnosed with SLE, I would like all you moms and dads to know that is does get better!
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SHLOOPY
Diagnosed at 36
Everyday is different, we live in limbo, preparing for a flare up. The fatigue is disabling and the constant struggle to remain optimistic whilst suffering an almos...
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Sandy
Diagnosed at 46
Lupus varies. I know people who have lupus who are seriously impacted. I have what I call 'lupus-light'. It affects me every day, but in relatively minor ways. I am...
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Shruti
Diagnosed at 23
Hi I was diagnosed just when I joined my first job. And when I wanted to do all d partying and late nights which ofcouse I could not do. All my life changed in sec ...
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Tiffany
Diagnosed at 34
I want people to know that living with a debilitating illness every day wears you down, emotionally and physically. And, that maybe, before you judge someone for th...
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Lourdes
Diagnosed at 24
Fui diagnosticada a los 24 años, tengo 31 años con la enfermedad,han sido años de lucha, de cansancio, fatiga, dolores, tratamientos, rehabilitacion,depresiones, pe...
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Lourdes
Diagnosed at 24
Fui diagnosticada a los 24 años, tengo 31 años con la enfermedad,han sido años de lucha, de cansancio, fatiga, dolores, tratamientos, rehabilitacion,depresiones, pe...
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sahar
Diagnosed at 44
lupus is a chronic desease,if u can control it, u can live with it.
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Jane
Diagnosed at 42
I was diagnosed with Discoid Lupus and Fibromyalgia in January 2012
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Zeila
Diagnosed at 27
I want to tell about autohemotherapy. I started do it after my second crise. My doctor is against. But I decided start and he doesn´t know yet.You can read about it...
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Alkaid
Diagnosed at 20
Even if you don't look sick, you are. With Lupus is more difficult to do daily tasks because of the fatigue and pain.
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flores
Supporter
todo
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Natasha
Diagnosed at 34
I was only dignosed only 6 months ago but my Rheumatologist said that I have been living with Lupus for more that 10 years just from looking back at my medical hist...
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dorali75
Diagnosed at 36
Avances sobre como curar esta enfermedad.
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Lisbeth R
Diagnosed at 23
Lupus change your life completely. You have to take care of every single detail of your health, but you can also live like everybody else. Always be positive. That...
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ruvy
Diagnosed at 31
When I first heard of LUPUS, the first thing that came to my mind was, its the diseased that have caused the death of our late President Ferdinand Marcos(Philippine...
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Terry
Diagnosed at 31
My journey with lupus began the day I gave birth to my daughter. I had no idea what was happening to my body. I thought that I had a tough delivery, and it was no...
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Choling
Diagnosed at 16
Lupus is a disease which requires constant attention. However, you must remind yourself that you have Lupus, Lupus doesn't have you. I feel ethnic minorities, espec...
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farhana
Diagnosed at 24
In Bangladesh most of the teenagers are getting affected by a dangerous disease like Lupus. When we are going to enjoy our youth the evil wolf(lupus) try to kill al...
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Idalia
Diagnosed at 19
I have been living (in all its extent) with lupus for 50 years now. I stepped out of cortisone some 25 years ago; ever since then, I have been on Plaquenil, and am ...
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Delia
Supporter
It changes my life...I have had learned and still do it, to handle the pain, yes, the pain throught all your joints, the anemia it has caused me and the infections ...
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Victoria
Supporter
Lupus....the Silent Assassin! Health Care Providers (hospital doctors/nurses/general practitioners) need to be better educated worldwide. Lupus sufferers and thei...
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becca
Diagnosed at 29
I want people to know that although it is not always easy to see, that it is painful. It is frusterating to watch everyday things that were once easy become almost...
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M.DIAZ
Diagnosed at 34
We Lupus patients need to be focused on living our lives not on the disease. Knowledge is the key to success. Talking to others family, friends even co-workers is i...
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mzyoga
Diagnosed at 31
Lupus is an exhausting frustrating disease.
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CORINTJE
Supporter
Lupus can be healed, when we have a strong will and faith in God!! Spirituality is the best medicine, as illness is the manifestation of all negative thoughts we a...
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jack5988
Diagnosed at 24
Although you may not see it, the disease it's there. Some of us are stronger than others, but I assure you all of us are affected in different ways. From Puerto Ric...
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Rhian
Diagnosed at 33
It is very important that others know how severe lupus is, and that is can be fatal. Lupus means that the immune system is in hyper-drive, and therefore starts to a...
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Roxana
Diagnosed at 29
Lupus is not contagious. A lupus patient may be fine one minute and in a second become very ill (without prior notice). We are at risk of mostly anything so we hav...
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Shabahn
Diagnosed at 23
Lupus is a one the most life altering diseases that anyone can get. It consequently can take over a person life and leave you feeling helpless because you have no c...
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Melanie
Diagnosed at 13
It's worst than cancer...
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Karin
Diagnosed at
It's a reality! People suffering from Lupus, look healthy and normal, but it all happens on the inside of the body!
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