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Lupus has many voices.  Add Your Voice »

Rhode Island

Lupus Foundation of America, Inc.
(888) 385-8787

Renee
Diagnosed at 30
I want others to know that while I may look "normal" I am ofetn exhausted and probably in pain. Some days I may be cranky,but son't take it personally and sometime...
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DEE DEE
Diagnosed at 48
I WANT OTHERS TO KNOW THE STRUGGLES WE HAVE DAILY EVEN THOUGH WE LOOK FINE ON THE OUTSIDE.
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Vanessa
Supporter
My sister, Vanessa, was diagnosed with Lupus in 2004, and has struggled with it ever since. In the last year it has gotten worse. We need all the support we can to ...
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DONALD
Supporter
father of daughter who has suffered with this debilitatig illness,watched the courage ever present in a painful relentless disease.yet grateful of every moment of t...
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Chris
Supporter
I just want people to actually KNOW about Lupus. I want awareness to be higher and more people to be informed of the intricacies of the condition. My hope is that...
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Jamie
Diagnosed at 34
Just because we may not look sick, does not mean we are fine! I struggle with fatigue and pain on a daily basis and don't like to complain. Us lupies are strong w...
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Vanessa
Diagnosed at 18
Life is a gift,I accept it. Life can be a struggle, I'm facing it.I no longer let LUPUS make me look at myself as a dying person, but as the person who is dying to ...
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Kim Sab
Diagnosed at 25
Lupus is now easier for doctors to diagnose which makes it easier to work and live a normal life. I am unfortunate I was very active and now very limited in 2003 I ...
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Zoe
Diagnosed at 26
Lupus is not a death sentence, but lupus will definitely change your life. Lupus can divert your dreams and aspirations, change your relationships with friends and...
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Victoria
Diagnosed at 23
Lupus is very serious if not taken care of. It's very hard to diagnose because there are so many sypmtoms that come & go over a period of time. People who have lupu...
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Christine
Diagnosed at 21
I want people to know the effects of the disease on an entire family, goals being dramatically skewed, complete life changes, the everyday challenges, the cost of h...
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