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South Carolina

Lupus Foundation of America, Inc.
(888) 385-8787

Ms D
Supporter
I just got Diagnosed August 13,2014 So I'm learning on how to take care of myself. The engery lost that comes from no where is , very hard. I have a lot to lear...
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Teri
Diagnosed at 55
I'd like to be part of a program, similar to Undercover Boss. Speaking with others who have Lupus, finding out what they do and don't understand, bring to them edu...
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Stubones
Diagnosed at 31
We have a Facebook support Group/Community where we discuss this issue and More! Lighthouse for Lupus closed Group is open to everyone and All are welcome to join i...
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Sally Boss
Diagnosed at 39
ONE DAY YOU CAN FEEL GREAT, HAPPY, ALMOST NORMAL, SO EXCITED TO BE ABLE TO GET UP YOU DO A LITTLE TO MUCH THEN FOR THE NEXT 3 DAYS, YOU HURT SOOOO BAD ALL OVER DYIN...
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Aquila
Diagnosed at 13
I want others to know that I have been living with Lupus for 7 years now and each day is a blessing to still be here. When I was first diagnosed I was like what is ...
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MsEllo
Diagnosed at 34
Lupus is a debilitating disease that no one should have to live with. It is painful and you never know when you will have a flare up. It has cousins by the name of ...
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Belle
Supporter
I want others to know that lupus is a cruel disease that produces very painful inflammation throughout the body. Lupus does not discriminate regarding sex, it affe...
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Crystal
Diagnosed at 38
People need to know that Lupus is very painful and flare ups can happen at anytime sometimes without warning. One day we can be fine and full of energy and next we ...
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Kimcita
Diagnosed at 21
Living with Lupus is a very scary journey that may periodically require lifestyle changes. By no means do I intend to say accommodate the Lupus. Accommodate yoursel...
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Carolina S
Diagnosed at 41
Lupus is a cruel, devastating disease; because many times others cannot physically see your pain or other symptoms, you have to suffer in silence or pretend everyth...
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Beverly
Diagnosed at 36
I want others to learn more about lupus. See it for what it really is. See it for the monster that it is. Taking people's lives away a little at a time. Consuming t...
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Ida K.
Supporter
I want people to know that Lupus is a mystery. My entire family has been subjected to the pain and suffering this this disease. We need to advocate together! I wea...
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Michelle E
Diagnosed at 24
Lupus has no cure. It is very painful and causes alot of fatigue. In living with Lupus, if u don't tell people what it is, they will never learn. I am currently in ...
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PhoebeAnne
Diagnosed at 26
You never know what you're going to get. And it doesn't matter what you look like. People often say, "you don't look sick". I have no skin problems and look a decad...
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Brandi121
Supporter
Never give up! Just keep fighting and moving forward. Educating others about Lupus and having other join in the support to finding a cure for Lupus.
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Elizabeth
Diagnosed at 28
Lupus is debilitating and very hard on a person and their family, because they suffer along with them. For those who know someone with lupus they need to be underst...
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Celeste
Supporter
Lupus (SLE)can cause TIA's (MINI STROKES) of which I've had at least 4 that I know of...and Glaucoma along with several other symptoms. It took doctors 10 years to...
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Sarahneal
Diagnosed at 20
IT TOOKS SEVERAL YEARS TO FINALLY KNOW I HAD LUPUS. THE PAIN AND THE FATIQUE WERE AWFUL. I HAD TOO CHILDREN BOY 8 DAUGHTER 11. BOTH WEE VERY ACTIVE IN SPORTS. ...
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Queneka
Supporter
Lupus is what I have but its doesn't have me. There are days the battle seems to be more then I can bare and seems to over take my emotions but I remind myself God ...
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Ronidee
Diagnosed at 18
I want others to know that while there is not a cure, you can live a successful life with Lupus. You have learn to have the attitude of "I have Lupus but Lupus does...
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Maxene
Supporter
I want people to take Lupus symptoms seriously and not mark off pro-active behaviors as "hypochondriac" responses. If more people know what the symptoms are, and do...
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Joni
Diagnosed at 17
I want people to know that Lupus can affect anyone and to know the signs. It is an autoimmune disease were your immune system doesn't know the difference between fo...
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Sharon
Diagnosed at 29
It takes lots of strength,Lot of Faith, Lot Of Prayer, and Lot Of support from your family and friends to help you to cope with this things.
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Stacy Cato
Diagnosed at 35
LUPUS SUCKS!
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cwade
Supporter
Lupus strikes at any age, any given time, and quite unexpectedly. It changes your life, each day demanding alot of care and understanding by your family,coworkers,a...
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Sylvia
Supporter
Hello I am Sylvia Richburg. I know four people in living with lupus that are close to me. I want to let you all know people not living with Lupus care. There are a ...
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karen
Diagnosed at 50
the book "nutritional healin" by dr.phyllis a. balch literally changed my life. buy it and go to lupus and it tells you everything you can do for it to help you. I ...
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PTRah11
Supporter
Most everybody's path with this disease is different and it changes over time. You can be fine one day then down and out for a week or more. Lots of people have it ...
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crazeeme
Diagnosed at 35
I live in a world understood only by others with this ailment- despite family and friends who "think" they understand, no one can truly understand the daily struggl...
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mcg0904
Supporter
Daughter suffering with Lupus and Crohns disease. Recent blood test indicated muscle loss. Would like to chat with anyone with similar issues. Thank you, Mary
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mcg0904
Supporter
Daughter suffering with Lupus and Crohns disease. Recent blood test indicated muscle loss. Would like to chat with anyone with similar issues. Thank you, Mary
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Dawn
Diagnosed at 40
I would love for people to actually realize that if I look healthy than there is nothing wrong with me. Or if I am tired for several days that it is not because I...
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Ray
Diagnosed at 37
Been taking glyconutrients for past 6 months and most of my Lupus symptoms have either dissapeared or there is an 80% improvement. Any Lupus patient should try glyc...
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Booskie08
Diagnosed at 24
Lupus can turn your life around in a complete 180. I had so many plans and things that I wanted to do but when I was hit with the diagnosis and treatment plan I wa...
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JulietC8
Supporter
Don't keep saying "you look great" because the worse I feel the harder I try not to let it show. I am in an advanced state, so things are rather bad most days. And ...
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Terrie
Diagnosed at 44
I am the face of Lupus. I HAVE lupus but it does not define me, nor does it own me. I am a warrior against a silent killer. I put on a brave face every day despite ...
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Lavelle jc
Supporter
It's a tiring illness...literally and emotionally. Support is key! Love and understanding in all areas can make big difference. But if we band together one day... ...
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Lea Ann
Diagnosed at 42
Living with lupus is hard to explain to people, you look like you are not sick so those that see you can't understand the pain and sickness you go through everyday....
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Tanesha
Diagnosed at 18
Lupus is a life threatening autoimmune disease that can affect different organs of the body, however with proper treatment, great family and friends, wonderful doct...
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Quantaria
Diagnosed at 15
Dont let Lupus stop you from living.
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May May
Diagnosed at 17
I want others to know that Lupus does not make the person. You can live with Lupus or let Lupus live with you.
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ANGELA
Diagnosed at 37
SINCE HAVING LUPUS I'VE NOTICE ALOT OF HAIR LOST. MY KIDNEY HAS TAKEN THE HARDEST HITS. I ALWAYS HAVE NERVE DAMAGE IN MY HANS AND FEET, I LIVE DAY TO DAY.
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crystal
Diagnosed at 25
lupus is an disease of many faces! it can mimick other diseases. it a hard disease to decribe to people especially when they look at you and say you dont look sick....
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Jerzey
Supporter
Lupus hurts. Everyday you have to live through the pain and the medication. This disease is just as important to cure as anything else many people have it and dont ...
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Sheila
Diagnosed at 30
That my story unlike others is that I was fortunate enough to have a rheumatologist that saw the signs that I exhibited and immediately referred me to my very compe...
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Jenifer W.
Diagnosed at 32
Don't despair! After living with severe pain for 8 years, seeing 3 rheumatologists, and trying 11 different medications, my doctor and I finally found the right com...
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Alicia
Diagnosed at 45
It's livable. What a relief to know what's happening.
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Kelly
Diagnosed at 43
Lupus can make you feel like an "Unsolved Mystery" series... So many random symptoms that come and go like the wind. Eventually, symptoms and patterns should help y...
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Patti
Diagnosed at 40
It sneaks up with you. You need to monitor it closely or it will knock you for a loop
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ANN
Diagnosed at 50
There many types of Lupus. I have SCLE. It affects my skin and joints.I have a severe case. When you see someone in a hat or long sleeves in summer,it's not always ...
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Cynthia
Diagnosed at 23
I want people to know that Lupus is a very serious auto-immumne disease. That can effect women, children, and men. To me lupus is almost like a hidden disease becau...
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Lohnnie
Diagnosed at 15
Lupus can be a disease that can make or break you. I decided a long time ago that I didn't want to let it control me....that I was going to live...period.
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Lynn
Supporter
Thanks to the efforts of LFA our daughter is in a clinical research trial at Duke. Until Ocotber 2010, there had been no new FDA approved drugs for treatment of Lup...
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Sue
Diagnosed at 53
Lupus is a day to day REAL battle. Lupus can attack a body in so many ways; different parts of your body and at different and most likely inopportune times. A lupus...
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LORI Auer
Supporter
Lupus is a very difficult disease and does not play fair. Likely before you are diagnosed you or others will think you are going a little crazy. The pain can tend t...
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Kym
Diagnosed at 27
When I was diagnosed, I was told I would have 20 years to live. That was almost 16 years ago. I have never let it get me down and control my life. Now, people ca...
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Wendy
Diagnosed at 37
Lupus is a systemic autoimmune disease that can affect any part of the body. The problem with lupus is, people can't tell how sick you really are. That's one of the...
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Victoria
Diagnosed at 17
Lupus is a chronic, autoimmmune disease in which the immune system attacks your own body. In Lupus, the immune system is overactive, causing it to damage joints, sk...
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