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Lupus has many voices.  Add Your Voice »

Tennessee

LFA, Mid-South Chapter
(615) 298-2273

LFA, Memphis Area Chapter
(901) 458-5302

Meta
Diagnosed at 40
Lupus changes your life.It forces you to make accept that nothing will ever be the same again.
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Opal Lanma
Diagnosed at 58
I do not feel comfortable at this time
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Mary Dacus
Diagnosed at 40
Lupus is a very scary illness. People don't know what it is and that is very unfortunate. I have to explain it to almost everyone that I tell that I have Lupus. The...
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Gail
Diagnosed at 36
Lupus is very painful disease.It has controlled my whole body.It has attacked my heart,kidneys,skin,joints and lung.i have to go to many specialist.My aunt also had...
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Ladonya
Diagnosed at 28
I got pregnant with my son I had to go to a perinatologist to monitor me cause of antibodies in my blood.
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Lynna R
Diagnosed at 26
If you have Lupus the most important thing to know is to keep a positive attitude no matter how hard it is. If you are blessed to have a support network like a spo...
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Tisa B
Diagnosed at 26
Lupus is a disease that doesn't have a noticable image, you can look so normal, but it is very debilitating. This disease minics so many other diseases, it took ove...
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Pat
Diagnosed at 62
Lupus is a desease that steals your life because it is control. No you. I lost a friend to it and now it is in my kidneys also. It is a cruel mystery because no one...
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dana
Diagnosed at 38
Lupus is a very misunderstood and overlooked disease, I feel when I go for care I get looked down on because of my complaint list, I'm never taken seriously...to an...
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Tip's
Supporter
Lupus is something that as of right now cannot be cured and can kill you. Lupus can take your strength. Get your hormones level tested women. Lupus is real. If you ...
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Becky rick
Diagnosed at 42
It is a illness that likes to arrive like a thief in the night. Attacking what ever or whenever it wants. It slowly takes your life away little by little. To look a...
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Dorothy
Diagnosed at 42
SLE hides behind other illness. Lupus is a illness that is awful I know why it's reference as the cry of the wolf it attacks a person's body as mean as a big gray w...
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brittany b
Diagnosed at 13
I would like people to know that lupus is not the easiest thing to live with and you need alot of support to help you live and cope with it i have had lupus since I...
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LaFleur
Diagnosed at 50
It can take a long time to diagnose. started having seziures at 11 mo. I had them off and on until I was 30-finally put a stop to them.My hair started to fall out i...
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patricia
Diagnosed at 30
when i was first diagnosed i was in complete denial after years of not taking care of myself i'm paying for it now i had a heart attack in 2011 i have trouble breat...
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alimassie
Diagnosed at 36
Learn as much as you can from reputable, reliable sources. You must be your own advocate. You need to be willing to participate equally with your doctor in your t...
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Wendy M.
Diagnosed at 38
I've just recently been diagnosed. The severe pain in my joints and extreme fatigue are major issues im dealing with right now..
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Ride4Lupus
Supporter
This disease has definitely proven to be cruel to me. It attacked the lining of my heart, kidneys, and skin. I have memory and concentration issues. The Lupus is no...
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TiffanyL
Diagnosed at 24
It's a disease that likes to play tricks on you. You can finally have a hold on life & know that you can be very productive, but soon as you do it trips you up & re...
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Brooke Dun
Diagnosed at 27
Lupus is one of the most terrible diseases because many people judge by if you look sick or not. Just because a person doesn't look sick doesn't mean they are not s...
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ssh49tn
Diagnosed at 63
How horrible it can be, even though there are few outward symptoms, & that, if you have it, you never know when a flare will strike.
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Tanya H
Diagnosed at 41
I have just been diagnosed a d have a ton of questions. I am married and a stay at home mother of 3. They are the joy and inspiration of my life!!
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MelissaLyn
Diagnosed at 19
Lupus can hurt you emotional && physically its good to always have a support system to back you up all the way. Its very difficult at times but you cant let it cont...
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AshleyDill
Diagnosed at 27
Lupus is a very difficult disease. It attacks any part of the body at any time. And you never know when that time is. I have had a hard time with lupus since I was ...
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Karen
Diagnosed at 39
Lupus is a terrible, complicated, and little-known "invisible" illness. Friends and some family still do not understand how serious Lupus is/can be although I try t...
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amber_dasc
Diagnosed at 14
Lupus does not control your life, you do. Do what you want to do, be what you want to be, and live the life you want to live because having Lupus can slow you down,...
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CP
Diagnosed at 37
Lupus is probably one of the most misunderstood illnesses around. Unless I am graces with the Butterfly Rash or some other outward manifestation people would never ...
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Joy Irwin
Supporter
I want people to know that the fatigue is absolutely debilitating. When a person doesn't have the strentgh to raise their arms or bend over and tie their shoe, it's...
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Sherron
Diagnosed at 41
Lupus is a terrible disease that affects you physically and emotionally. Having a good support system such as family and/or friends really helps the lupus patient....
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Kimberly
Diagnosed at 39
I want others to know that you can have lupus for years without a definitive diagnosis. Although I know it's a hard disease to confirm, stick to your own instincts ...
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Felicia
Diagnosed at 36
Lupus is a very difficult disease to deal with, many people are not aware of the emotional stress that it causes, I'm praying that we can raise awareness so others ...
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Rosalyn
Diagnosed at 13
Lupus can be hard to live with. Some days you wake up filled with energy and ready to tackle the day. Other times, you wake and can't even get out of bed because of...
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Sharon M
Diagnosed at 40
Lupus is a very difficult disease to live with and the pain can be unbearable at times. Sometimes you just have to put one foot in front of the other and face the ...
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Tracy
Diagnosed at 36
Lupus effects everyone in a different way. It is not the same for everyone and it is not something you see by looking at a person. Lupus lives inside you and is a b...
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amg
Diagnosed at 15
Lupus can affect one person in many different ways, don't assume that a person who sleeps alot or can't run a marathon is lazy. Ask questions first before you make ...
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Sara
Diagnosed at 21
I just wish people understood how much pain I'm in and how tired I am every day. No one knows how much strength it takes to keep going.
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CORINNE
Diagnosed at 32
WE ARE ARE NORMAL LIKE THE NEXT PERSON, WE HAVE OUR UPS AND DOWNS MENTALLY AND PHYSICALLY! SOMETIMES WE NEED A EAR TO LISTEN, A SHOULDER TO LEAN ON, SINCERE HUGS WI...
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lanewman77
Diagnosed at 25
There is no cure for Lupus and it affects individuals and their families in many different ways. I can't tell you how many people I've come in contact with that hav...
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Trena
Diagnosed at 37
Lupus is not invisible, if people can't see your pain, they assume you're not sick..you know the old saying " but you don't look sick". Lupus can affect the brain,...
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Julie Culp
Supporter
Lupus can effect each person different. There is no single test to postively diagnosis you with Lupus. The average person goes through 4-5 doctors before they get a...
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Joy
Diagnosed at 48
I think I mostly want others to know that exhaustion is debilitating. When you don't feel like even putting your shoes on, it is highly unlikely that you are going ...
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Michelle
Diagnosed at 32
A person who has lupus will not always look sick.
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melita08
Diagnosed at 50
It is a difficult disease to diagnose.
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Kristyouna
Diagnosed at 21
I want people to know that Lupus is not contagious. Lupus is a severe inflammatory disease that can affect various parts of the body, especially the skin, joints,...
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Linda Nech
Supporter
I learned that, people need to get educated and learn about Lupus and that includes the Medical Field. My daughter has Lupus and while she was in the hospital bein...
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TiaM
Diagnosed at 21
I would like for people to know that those who have Lupus may look perfectly healthy on the outside but be dealing with multiple medical challenges internally. Many...
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Patti
Diagnosed at 29
Lupus is a disease that knows no name, It can affect anyone at anytime at any age. It is a disease just like all the others MS HIV Cancer. Worlwide over 5 million p...
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McDonald
Supporter
I just met a friend with Lupus and she looks so healthy , she has been living with Lupus for sixteem years.As she would tell me about her good days, their are many ...
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Lee Pigg
Diagnosed at 20
I want others to know that no two people with lupus are the same and that we each handle to disease in different ways. Being diagnosed with lupus is tough, but it c...
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Dale Joyce
Supporter
When I was first diagnosed, I immediately went to the computer and saw the average life span was 10 years. Life was like a Roller Coaster.
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Danielle B
Diagnosed at 30
how many people can have lupus and not even know it. i think that i learned that when you are not in a flare then lupus does not show up in tests.
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Tammie D
Diagnosed at 32
It's SO difficult to get diagnosed. I was first diagnosed at 32 but looking back I had symptoms in my teens. Don't give up and don't focus on a name for the disease...
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bagowire
Supporter
it strikes for no reason... not from behavior... nor genetics... just random bad luck of the draw...
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DSRM
Supporter
Lupus is a sneaky disease. We may appear fine on the outside but on the inside we are in lots of pain and with very little energy. On days we do feel better it isn'...
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Jessica P
Supporter
Lupus is a crazy illness that can affect your entire body. You can't always tell when a lupus patient is suffering and you don't always know when their lupus is go...
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donna
Diagnosed at 54
It's very hard to explain to others how and why you feel so bad.You look alright so people just don't take how you feel seriously
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Sheila
Supporter
It is a disheartening, crippling disease. There are so many people that do not know all that this terrible disease can do to people.
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Angela
Diagnosed at 37
Lupus is a chamillion of a disease, unless you have the disease you cant really truely understand. So if you know someone with Lupus be kind, stress is a part of L...
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Angie
Diagnosed at 30
That lupus is an invisible insurable life threatening illness. You may look perfectly well one day and before the day is over be in the hospital fighting for your l...
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Jennifer H
Diagnosed at 15
That this can be a lonely, painful, exhuausting disease. That Lupus patients HATE the phrase "But you don't look sick!". Also, that flares are incredibly unpredic...
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Lynn
Diagnosed at 40
It is important for family members to be supportive of the one with Lupus and help when help is needed. For instance, mowing the lawn and other areas of yard work t...
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Brit
Supporter
That it does not descriminate and that Lupus affects everyone, not just the individual who is diagnosed with Lupus.
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Allison O
Diagnosed at 34
I think the biggest thing to work through for me is the fact that you look normal and no one can understand how the simplest task is so hard to do. Just because yo...
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Donna Verh
Diagnosed at 46
Please understand that we are not lazy or just in need of attention. We are sick and need your help and support, just like with any other serious illness.
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Julcrose
Supporter
To realize how much Lupus affects people. Every day and in every way. For people to understand what Lupus is.
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Kim Foutch
Diagnosed at 37
Just because we look ok doesn't mean we are! It takes alot of selflessness to hide this kind of pain from the ones we love. Please show some compassion, thank you.
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ANGIELOU
Supporter
Lupus is a terrible disease the same as cancer is, it deserves and needs more attention for research. The people who suffer from it and their families face a lot of...
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