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Lupus has many voices.  Add Your Voice »

Texas

LFA, Lone Star Chapter
(469) 374-0590

LFA, Texas Gulf Coast Chapter
(713) 529-0126

Almendra R
Diagnosed at 14
Lupus might be strong and unpredictable, but we are stronger. Fighting against it its our choice. We have Lupus, Lupus does not have us. Sometimes I wish Lupus wou...
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GBenavides
Diagnosed at 27
The hardest thing about living with lupus is explaining the pain, moods, feelings to others. Live with Lupus day by day, each day is different.
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April Ll
Diagnosed at 32
lupus is an autoimmune disease, where your immune system, the one that protects us from infections, is unable to distinguish healthy cells, organs and tissue, from ...
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Mommie and
Diagnosed at 19
I want others to know that they are not alone. That there is life after a lupus diagnosis. That not everything the doctors tell you is correct. That there is HOPE!
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Lisa
Diagnosed at 30
Don't let the Lupus win. By making the right and healthy choice, Lupus can be manageable.
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Raquel
Diagnosed at 33
Lupus is cruel! It doesn't give notice of when a flare is coming. You can go to bed feeling okay and wake up feeling like you've been hit by a truck. It not only ef...
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Juju Moser
Diagnosed at 21
I want others to know that Lupus is not a "turn on, turn off disease". I have heard before that it seems like I have the energy to do things when I "want"to. The tr...
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Mika K.
Supporter
Lupus does not just affect those who have been diagnosed. It also affects those who support the diagnosed and watch their every day struggle with the disease. My mo...
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KOATNEY
Supporter
THIS DISEASE IS SPECIAL AND YOU HAVE TO TAKE CARE OF YOUR BODY AS SO. I THOUGHT I HAD THE FLU WHEN THIS ALL STARTED, I WAS ACHING ALL OVER WITH PAIN AND SWELLING. I...
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AlysiaK
Supporter
While there's no cure (yet), you might be able to control how Lupus impacts you by maintaining as healthy and active a lifestyle as you can. In my 50's, this previo...
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Angi
Diagnosed at 41
Lupus can show in any facet of your body. I had no idea so many African American women suffer in silence. Please get checked!
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Athena
Supporter
I will be supporting this fight until a cure is found!
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TexanMom
Diagnosed at 30
Lupus affects all areas of life. Social, psychological, physical, and emotional ramifications of the disease can make it hard to talk about and understand. In all...
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Gale Gassi
Diagnosed at 55
The biggest challenges are having enough energy to live fully. Staying well means out of the sun, this is difficult in the Austin, TX climate where recreation is on...
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Valerie
Diagnosed at 15
It is difficult and lupus patients need as much support and comprehention from our family and peers.
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Yadira A.
Supporter
Don't let Lupus become/define your life! Don't give up!
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DolphinLuv
Diagnosed at 47
Lupus for me is constant chronic pain,also it's caused my life to change tremendously. Many relationships have come & gone, but most importantly I can say that I'm ...
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Jessica
Diagnosed at 18
I'm in remission for about 30 years and have three beautiful daughters, you can live a good life if you are willing.
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LaDarius.B
Supporter
Lupus Is Something We Will And Can Defeat Together
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Elizabeth
Diagnosed at 64
I was very active in my Community and owned two businesses at the time. I catered weddings and corporate event for almost 30 yrs. More and more the pain was getting...
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Denice
Diagnosed at 12
I want other to know that when i first found out i had SLE Nephritis i really thought it was the end for me since but later in life i realized that i had to be tha...
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Mel
Diagnosed at 29
While we may look perfectly fine on the outside our disease is real, we truly are fighting a serious illness that can be life threatening in some instances. Please ...
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Vivian
Diagnosed at 57
Lupus is a very mysterious and devastating disease,I believe it was present in my body before the diagnosis,at that time I was being treated for Shingles and at the...
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MariaElena
Diagnosed at 43
Lupus is a disease that not only affects the patient, but the entire family as well. It is a sneaky disease...for it does damage, sometimes without your knowledge ...
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Karen
Supporter
I have lived with joint pain, hair lose night sweats, real bad headaches and always so tired too. But you can manage this disease with the right treatment, I work a...
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Clarice Y.
Diagnosed at 44
Just because you may look good does not always mean you feel good
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hiyelo811
Supporter
Like others back in 1996 there was not much information on this topic. When I was finally diagnoise I was shocked and thought I was going to die real soon. I read...
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Elsa
Diagnosed at 38
Just because a person with Lupus sometimes does not look sick does not mean they are not sick. Lupus affects everyone different and in many different ways.. Lupus ...
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ELHAM
Diagnosed at 37
Listen to your body,take rest,exercise and eat healthy and the most important be happy to have stronger immune system:)
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kim s
Diagnosed at 45
you have to have a strong mind set, " I'm going to win this battle with Lupus..
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Kim
Diagnosed at 22
The slogan for lupus is "but you look fine". What goes on inside us and what others see is often 100% different. It would be easier for people to understand what li...
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LUBY
Diagnosed at 51
My heart goes out to everyone who is suffering from this illness. I was just diagnosed with Lupus this past week but I had been told by my M.D. that I had all the ...
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RhiasRealm
Diagnosed at 49
Lupus takes over everything mental, physical, & emotional. It can be as "Mild" as a rash on your face, or as horrible as affecting all of your vital organs. It rear...
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Contessa
Diagnosed at 37
Want to encourage everyone that although you may have LUPUS I want you to be reminded Lupus doesnt have you. Be encouraged and know you can make it
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J.Dukes
Diagnosed at 46
Lupus is a very serious disease and very few people know about it or even understand it. Our symptoms and pain are real. Just because we don't look sick doesn't mea...
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connie
Diagnosed at 50
Lupus can be very scary and very devasting. I was diagnose with lupus when I was 50 and 2 years ago I finally learned how this illness works on my body. I am const...
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Jessica
Diagnosed at 25
Life does not end just because you have Lupus. In my case, it began because it taught me to cherish the people that I have in my life and to not take anything for g...
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HeidM
Diagnosed at 47
It would be satisfying to learn that those people living with those who have lupus begin to understand how isolated this disease makes lupus patients feel.
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Teresa
Diagnosed at 24
Lupus doesn't care who you are. You can pass someone in the store or on the street and never know they have Lupus. Most people with Lupus also has many other illnes...
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Koatney Fr
Diagnosed at 38
Living with Lupus has been a challenge for me. I had to learn my body and the symptoms of this disease. Not knowing the signs of the weight gain, hair lost and the ...
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Ariane
Diagnosed at 55
Lupus teaches you to slow WAY down and to put yourself as a priority. I have to be very conscientious of my energy, where I spend it and when I need to recoup. I ha...
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Ronna
Diagnosed at 49
Lupus will take you by surprise. What seemed like just fatigue, joint paint, a rash now suddenly has a name. And if you are like me, I knew nothing about it and i...
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April
Supporter
I want everyone to know that lupus is a difficult disease. Difficult to disgnose, difficult to manage, difficult to cure. As a matter of fact, there is no cure. I...
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Tereza
Supporter
Lupus is a devastating disease. It is very unpredictable and it kills. My daughter was diagnosed with lupus when she was only 14 years old now she is 28 and is stil...
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Larinda B
Diagnosed at 29
Lupus can be a cruel and debilitating disease. It not only affects the sufferer, but the entire family and friend unit of the patient. I try to remind myself dail...
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KathyC
Diagnosed at 40
Please know that you are not lazy or a hypochondriac. Please do no ever feel bad about needing to rest. Please don't feel bad about having to pay for expensive me...
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NikkiVicio
Diagnosed at 24
That I'm not making it up or exaggerating, that every day for me is different, and I'm trying my hardest to provide continuity/stability for my family.
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Tina
Supporter
Lupus is scary, most people don't understand and don't want to understand it.. I even had someone to tell me its like diabetes, as long as you talke your medicine...
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dshayey
Supporter
It's a real disease that is not talked about enough. When I was diagnosed with Lupus, I had never heard of such a disease. Awareness is the key. Living with Lupus c...
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April Llan
Supporter
Lupus is an autoimmune disorder, in simple words your immune system, the same system that protects you and fights against viruses and infections, attacks healthy ce...
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Tecilia
Supporter
I have been with and continue to support my dad in this journey with lupus. He was diagnosed in 94 and has been blessed tremendously with awesome doctors.
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TracieGA
Diagnosed at 26
As I approach the 20th anniversary of my diagnosis, I want others to know that I am blessed to be alive and thriving. It is possible to live a full life while respe...
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LuridMuse
Diagnosed at 29
The hardest thing I had to learn is how to take care of myself. I've always been bad about medication, but I've finally learned after 7 years that I have to take th...
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Beatrice H
Supporter
Lupus is a debilitating disaese cane effect many organs, with more medical research and people advocacy together we can find a differene
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Monty F
Supporter
Just because someone looks ok on the outside doesn't mean they feel ok on the inside. I hear that so often...."but you look good." Every day is a struggle, some goo...
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Marci
Diagnosed at 39
I want others to know that YOU CAN live a full life with lupus if you take really good care of yourself and listen to your body. I want others to know that this di...
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Shelly
Diagnosed at 45
I want others to know that Lupus is a very isolating disease. Most of us that suffer from Lupus look absolutely fine and healthy on the outside, but are sick on the...
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Diana Free
Diagnosed at 49
Just because someone looks ok on the outside doesn't mean they feel ok on the inside. I hear that so often...."but you look good." Every day is a struggle, some g...
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lucylai96
Diagnosed at 15
I want others to realize that this disease cripples and prevents people from living a normal lifestyle, yet we who have it strive to get through each day with perse...
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kjackson24
Diagnosed at 24
People look at you and say that you look normal, but on the inside you suffer with pain from your joints, can't enjoy outdoor playtime with your kids because the su...
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kjackson24
Diagnosed at 24
People look at you and say that you look normal, but on the inside you suffer with pain from your joints, can't enjoy outdoor playtime with your kids because the su...
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Katrina
Diagnosed at 22
Lupus can be very painful at times sometimes you can wake up and can barely move your body because your bones and joints hurt so bad and you can't do anything about...
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Krystal
Supporter
It's a serious disease and some cultures is more in than others like African American and Hispanic women.
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TRISH
Supporter
Lupus effects all age groups.
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Michelle F
Diagnosed at 11
It affects every one differently. My mom has lupus and she hasn't gone through half the stuff I've gone through.
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LupusinTX
Diagnosed at 45
Lupus affects everyone differently. Just because I don't look sick doesn't mean that I haven't been up half the night crying because the pain is so severe.
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Mary S
Diagnosed at 56
Lupus is a chronic illness that is with you every single day for the rest of your life. It is a factor in everything you do or want to do. It affects joints, muscle...
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Mary G
Diagnosed at 54
Lupus is a life threatening crippling disease that is not always visible! We need a cure!!
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Elayne
Diagnosed at 15
Lupus is a silent killer that allows you to look completely normal on the outside while it kills you in the inside. During a flare it is a monsterous killer that ma...
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Sue
Diagnosed at 52
Lupus is real and when you hear someone say oh I know someone who had lupus and they did just fine, you know they really dont know much about lupus. I have been sic...
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Georgia
Diagnosed at 15
Lupus is a very serious disease! At the tender age of 15 I was diagnosed and very lost and confused on how I had been diagnosed with this disease. I think all peopl...
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Sally
Diagnosed at 18
How it can affect the simple everyday things that we take for granted. How difficult it is to accept our disease and cope with the pain and frustration. The emotion...
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Safronia
Diagnosed at 29
When I was first diagnosed with Lupus, I was discouraged and defeated. When I educated myself about the chronic illness and took responsibility for the success of m...
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Kasey
Diagnosed at 13
No one will ever know what its like to live with lupus unless they are going through it themselves.
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sally
Diagnosed at 31
Lupus is a disease that not only affects the life of the one living with it,but the whole family. Its sort of a silent killer. Before someone is diagnosed your body...
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Sherwanna
Diagnosed at 33
I WOULD LIKE FOR OTHERS TO KNOW THAT LIFE IS NOT OVER ONCE YOU ARE DIAGNOSED, THAT MEDICAL TECHNOLOGY AND MEDICINES HAS COME A LONG WAY AND THERE IS SO MCH OUT THER...
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Jennifer W
Diagnosed at 28
After 6 years of constant pain and illness, I was diagnosed with Lupus. It has severely impacted my life in every way imaginable. My kidneys, eyes, liver, skin, ene...
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Rachel
Diagnosed at 40
Lupus is my diagnosis, I just needed to say it. It has many many years of suffer with no diagnosis. We know what I have it was sacry but at least know I am not cra...
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Kris Kahle
Supporter
Lupus stinks! I've watched my husband suffer with Lupus Cerebritis for 20 years. But his story is unique. He's only had 3 flareups, but the last one tried to take ...
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Joyce
Supporter
A person with Lupus may look healthy, but may be very ill. Lupus effects every organ in the body including blood. Lupus is to be respected and understood, not jus...
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Ms Walker
Diagnosed at 30
What I want people to know is lupus sneaks up on you right in the prime of your life. If the Dr. doesn't know what to look for, it could be a while before you get d...
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JlBarela
Diagnosed at 7
Lupus is a significant public health issue that requires national attention and action now.
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Cristina
Diagnosed at 27
Lupus is such a persnickety disease wherein managing and coping with it is oftentimes excruciating, debilitating, and depressing. Lupus does not always present its...
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Starr612
Diagnosed at 27
I want people to understand that this disease is a silent killer and if you do not get it under control it can be deadly. I want others to know that some of us that...
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erica
Diagnosed at 27
Lupus is no fun, and I wish they had more research for a cure becasue the government needs to realize that Lupus is just as bad as cancer and a very devistating dis...
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angie722
Diagnosed at 35
Lupus is real. It doesn't "just go away". It isn't something we can "just get over".
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Kiesma
Diagnosed at 35
I want people to know that Lupus is a very debilitating disease. Not much is known about this disease and it has ravaged my body from a very young age and noone too...
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Rita Cabel
Supporter
I want them to get educated on what this disease is and what it causes in a person.
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Amy M
Supporter
Lupus is a devastating disease. It affects millions each year. Lupus is like a snow flake no two are alike. Lupus affects the patient, your family and your friends....
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Erika
Diagnosed at 17
Lupus is a very horrible disease.It can affect your internal organs,skin,and joints.A lot of people also experience a rash called "butterfly rash" not only on our f...
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D
Diagnosed at 14
STOP saying it is an invisible disease! Yes for many it does not appear on the outside, but for the handful of us that suffer from discoid lupus IT IS VERY VISIBLE!...
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Amber
Diagnosed at 19
They say Lupus is a rare disease so rare you just wouldn't know if someone you loved even had it. Even though it may look like they look fine they really hurt in th...
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Elisa C.
Diagnosed at 19
People have a certain idea of how a sick person should look, but lupus is a disease that proves otherwise. Having lupus is sometimes like having a second job. Peopl...
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Cristina
Supporter
SLE or lupus, is a systemic autoimmune disease (or autoimmune connective tissue disease) that can affect any part of the body. As occurs in other autoimmune disease...
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IsmaelG
Diagnosed at 18
Systemic Lupus is one of those illnesses that a lot of people have heard about but, don’t know what it affects. Lupus can be (if not treated) an insidious diseas...
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ELIZABETH
Supporter
IT IS HARD WAKING UP IN THE MORNINGS, ALL YOUR BONES HURD AND YOUR BODY IS ACHY. AS SOON AS I HIT THE SHOWER WITH COLD WATER IT GOES AWAY. IT HURTS MORE WHEN THE SU...
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Elizabeth
Diagnosed at 22
Lupus! I didn't really know it existed until I got diagnosed. It's been really tough but I have managed to pull through. Staying strong and having faith helps alot!
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Timeka
Diagnosed at 24
I started having symptoms caused by lupus SLE in 1998. I exeperienced a (TIA) and swelling of my limbs and joints Then, I went into heart failure and (a blood clo...
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emexas
Diagnosed at 39
YOU CAN'T IMAGINE HOW IT EFFECTS SOMEONE UNLESS YOU HAVE IT OR KNOW SOMEONE WHO DOES.
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Debbie
Diagnosed at 42
Lupus is a very real disease. It can happen to anyone, wife, sister, daughter, son, husband or grandmother. It does not act the same in any 2 people, that is why it...
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luckypaco
Diagnosed at 28
Lupus is so opportunistic. If anything is going on with your health it pounces on you at the worst time. You really have to focus on living a healthy lifestyle to...
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Jesselilly
Diagnosed at 51
Lupus is an invisible bandit. It steals your life as you knew it and makes the life you live very unpredictable. Life with lupus can be, and is for many, a painful,...
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Jessica
Diagnosed at 30
I want people to know more, so that they may understand even a little about the battle we fight every day. Lupus is painful, exhausting, and frustrating. The more ...
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Marsha
Diagnosed at 46
Lupus affects many people in many different ways, and sometimes others can't see the symptoms easily. Especially if the person experiencing the symptoms has had the...
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AiLien T
Diagnosed at 12
I CAN DO ANYTHING YOU CAN! Even though there are days when I cannot get out of bed because of the muscle and joint aches and fatigue, I can still do anything a norm...
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Ashley
Supporter
Well with my condition, Lupus hit me hard, and attacked my kidneys, I had to go through chemo and at one time 80Mg of prednisone. It was pretty bad. I reacted to th...
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Michelle R
Diagnosed at 18
It is a life-altering disease and can cause normal, day-to-day activities to be almost impossible to accomplish.
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MsBrandi79
Diagnosed at 22
Lupus is an everyday struggle, but with a positive outlook, proper diet and exercise... The good days outweigh the bad. Living with Lupus 11 years.
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Cissi Hans
Diagnosed at 34
Lupus doesn't just affect the person diagnosed. It affects your entire family. Your family battles this disease with you.
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Tammy S
Diagnosed at 19
People often tell me I don't look sick, but what they don't know is that what you see isn't always what appears to be true. That's what's so unusual about auto immu...
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Gabby
Diagnosed at 24
Lupus is an "invisible disease"--I may not look sick, but I am. I may feel fine one minute and terrible the next. We need to push for autoimmune disease awareness, ...
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Sherwanna
Diagnosed at 25
I only know what I have learned since being diagnoised which is, it has some of the same affect as arthritis and I can not be in the sun for to long, It began with ...
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CONNIE
Supporter
Knowledge is power, and the World needs to know Lupus, and how to deal with. The World Media should play an important role of informing and spreading the news about...
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Michelle
Diagnosed at 35
It is very debilitating and yet the person can "look" perfectly healthy.
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Quen
Supporter
I just want more people to be aware of lupus.
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irma
Diagnosed at 40
That it is hard to diagnose. There is alot of information we need to know, which I still am not fully informed. There are days you will hurt so much or are so tired...
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Amanda
Diagnosed at 31
Lupus is an autoimmune disease that so many people are unaware of its devastating impact on those diagnosed with the disease.
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Gabby
Diagnosed at 15
Although lupus may not be physically visable, I suffer from various forms of inflamation that can be physically painful. This inflamation has requiered various surg...
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MaKailaAri
Diagnosed at 19
I want others to know that Lupus is a very serious disease and people are struggling daily with this disease. I want them to know that it is not a curable disease a...
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Claudia
Supporter
Me encantaria q la gente supiera lo q es morir lento y en silencio...desgraciadamente la gente espera hasta que uno muere para aprender y tratar de entender esta h...
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Latoya
Diagnosed at 20
Lupus really is an invisible disease. Because "I don't look sick" people tend to not take me seriously. Lupus is real. Lupus is there. Lupus is more common than...
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Araceli H.
Diagnosed at 33
Constant pain, muscles ache and I'll have to say it almost feels like when you are about to get the flu. However, with lots of TLC and rest you can feel much better...
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Brandy
Diagnosed at 9
Lupus is a chronic disease that affects each person different. The issues I have with lupus are not the same as the girl sitting next to me at the doctor. It is dif...
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AlexiusMom
Supporter
My daughter was diagnostic at age 16, she is now 18. I hate lupus! People with it indure so much but the prejudice because of your outward appearance is just ignora...
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Jessica
Diagnosed at 19
I want people to know that lupus can take away all those little things you don't appreciate until they're gone. You don't realize how much you take for granted the...
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Ashante' W
Diagnosed at 28
Lupus can attack your immune system and your body when you least expect it. One day you'll be fine and the next day you'll find it hard to get out of bed. It's an "...
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Missy Jo
Diagnosed at 23
This illness affects you emotionally and physically every day. It is a very frustrating illness because no matter how hard you try it will be with you for the rest ...
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lindsay_b
Diagnosed at 19
Lupus, although invisible to people on the outside, affects almost every aspect of my life and the lives of those who know me. The only predictable thing about this...
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Jack/Nette
Diagnosed at 21
Google it!
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Dana Bucko
Diagnosed at 19
That lupus might be invisible sometimes but it still hurts.
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tmc
Supporter
The first boyfriend I had in my life was diagnosed at 16 years old. Lupus turned an upbeat, athletic boy into a frail young man.
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lagama
Diagnosed at 24
Each lupus patient needs to not give up and each one of us has some similar symtoms and others we don't.
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lrhodes
Diagnosed at 31
Lupus has affected my life and my family alot. When I was 31 years old and weighting 125 pounds. I suffered a heart attack. I had developed a blood clot in the art...
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nana nieto
Diagnosed at 39
I want people to know that just because I dont look sick it doesnt mean that i didnt feel like crap 10 minutes ago. I want more awareness and respect for this disea...
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Lilo
Diagnosed at 20
Its out there We may not look sick But it's real
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Sheera
Diagnosed at 26
Beauty lies in my confidence, not my size, skin or disease.
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Daphne
Diagnosed at 21
I want people to know lupus is NOT a death sentence! I have lived with the illness since I was 21 and it has been a struggle, but I have battled it head on because ...
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ElianaV
Diagnosed at 16
People who are diagnosed with lupus may not look sick but everyday is a struggle. We wake up and go about our day with half the energy that most people have. Lupus ...
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Yadira
Diagnosed at 15
One big thing I've noticed about people is that they tend to minimize all that could go wrong with Lupus patients because we don't always look how we feel. They ju...
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tara
Supporter
This is a serious disease that can affect anyone, even the sweetest person alive.
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morangels
Diagnosed at 21
LET'S FACE IT. YOU CAN'T CONTROL WHEN THE LUPUS FLARES AND/OR DECIDE TO AFFECT YOUR LIFE BUT YOU CAN HAVE TOTAL CONTROL OF YOUR ATTITUDE TOWARDS IT. NEVER, EVER G...
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KhesJayy
Supporter
It is real. It is very serious and it does definitely change your life. I want others to be aware that it can happen to anybody.
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kim
Supporter
this is not fun, you have a life and then it is taken away, we need research to know more, to help more.
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Adrie Esco
Supporter
Lupus is hard but we have to find a way to get through
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isabel
Diagnosed at 40
i am 40 yrs old and have suffered from joint pain especially when the weather changes,headaches,nauseaous and i dont want to live like this. please help on this i w...
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slplupie
Diagnosed at 37
It is a very devastating disease (with mine being systemic) to all areas of your life esp. if not in remission which mine is not. That it is not all in your head ...
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secret83
Supporter
Lupus sometimes hurts and could make you feel lonely. but if you have faith in yourself anything is possible. be thankful that you're alive and moving on with life....
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Shalonda G
Diagnosed at 24
Lupus is a devasting disease that affects every aspect of life of the person living with the disease as well as their families.
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C. Simmons
Diagnosed at 23
Lupus is a terrible disease that will take your life by surprise and alter your way of living FOREVER. There needs to be more awareness through media outlets and w...
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lomeli
Diagnosed at 10
How can help me if Im from Mexico
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Scheaney
Diagnosed at 30
I want others to know that there are many different symptoms and reactions to medication. Someone with the same diagnosis can go through totally opposite reactions,...
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CBarnes
Supporter
You may not understand what a person with alupis goes through in a day to day struggle but always be supportive.
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kassandra
Supporter
You CAN have a normal life with Lupus!
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Jasmyn
Supporter
I want others to know that Lupus is here and its not going away. We should be raising awareness about it just as much as there is awareness for cancer, AIDS, and he...
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Tara
Diagnosed at 36
That this is a invisible disease which means just looking at a person you can't say they have Lupus. This affects each person differently and it is a very painful d...
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Tina
Diagnosed at 45
It is a real at times debilitating disease. I took the doctors over six months to diagnose me. I was sent back and forth to different doctors, who kept encouragin...
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Elena584
Diagnosed at 15
LUPUS IS NOT CONTAGIOUS!I want people to recognize that Lupus is not always physically seen.It is a internal bodily battle that exhausts, frustrates, and depresses ...
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AmyB
Diagnosed at 29
That this disease deserves the same respect that cancer, diabetes, heart disease, and others receive. That we are strong individuals that have weak days, not weak ...
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Sarah
Supporter
Lupus is a very important disease that is often overlooked. Lupus needs increased levels of research and awareness, and hopefully with the support from the communi...
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Xiang Qin
Diagnosed at 24
This disease can happen to anyone. It is real and people who are effected by it live in fear of what it might mean for them. But there is hope and with that we ar...
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none
Diagnosed at 38
It is very painful and depressing. Because I enjoy being outside and i can't (not for a long time). And having to take steriods all the time. I hate them.
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Anonymous
Diagnosed at 50
I want people to understand that without early diagnosis the prognosis is often quite severe. Lupus too often is life-threatening and life-taking.
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Laura P.
Diagnosed at 14
I just want to let them know that i'm a mother of two beautiful children and i'm always scare that when i'm sick i can't be with them,i mean i'm with them here at h...
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Shanna B
Diagnosed at 31
Living with lupus is extremely hard. You never know if today will be a good or bad day. It's hard to make plans to spend time with family.Therefore be sure to cheri...
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Robyn H
Supporter
Lupus is SO unpredictable. It can affect all the major organs of your body. Lupus can make you hurt all over. Lupus can cause you to feel depressed and sad from ...
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PTAmom4
Supporter
Medicine and technology is far too advanced to say we don't have a cure, yet. Lupus does NOT have to be a death sentence!
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Melanie
Supporter
Please get informed about Lupus and what it is. Lupus can damage all organs of the body. There is no single test to diagnose it. Although research has come a long w...
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lolomeeks
Diagnosed at 47
It has effected my life in such a way that it kinda scares me. I'm always tired and it has effected my memory in a way that scares me to. I've always been so good ...
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Millie Bug
Diagnosed at 13
You may look normal on the outside but the pain physically and emotionally is still present.
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Joyce
Diagnosed at 45
Lupus is a silent disease and hard to diagnose....may take months or even years to diagnose. Friends treat me differently now that they knoow....like I'm a fragile ...
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Lachandraw
Supporter
I suffer in silence. Aches and pains, worries, stress, sadness and anger....Praying for a cure!!!
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Cimarron
Diagnosed at 31
Support from my family & spouse has been key as has sleep, reducing stress & medication. I have the most control over sleep, stress & staying out of the sun & we al...
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Flightmom
Supporter
Lupus suffers need support and encouragement not pity. They can lead a normal life with the help of medication and moral support. They need someone to be there for ...
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Chiqui
Diagnosed at 56
That you may look good on the outside appearance but when it flares up you are incapacitated, and employers would be more informed about this illness and be conside...
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llydia
Supporter
this disease is a killer!
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Pam Esparz
Diagnosed at 18
That it's a REAL Disease and women Get it! It's Not, just somthing, is small This a Big Real Disease!
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Terri
Diagnosed at 35
Do not allow Lupus to be bigger than you are. Make your life your center. Dwell on the love, joy, and blessings the Lord has given you, pace your daily activities...
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Elya
Diagnosed at 26
Lupus is a chronic auto-immune disease. One minute your this healthy person the next minute your incapable of taking care of yourself. It affects all patients diffe...
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Charly
Supporter
This is a disease that steals my life, one hour, one minute at a time. My challenge is to take those moments back and make something wonderful out of them.
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Clara
Diagnosed at 42
it's important to have a support group and to keep all doctors visits. i havent' officially been diagnosed, but am being monitored.
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Tearra
Diagnosed at 16
Early diagnoses is the best defense. I was diagnosed 23 yrs ago. As GOD would have it, I was pregnant at the time. Although, that may not seem like a good thing, it...
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CW
Diagnosed at 12
What Lupus is NOT and a few questions from out in left field I have been asked: 1. It is not cancer 2. "does that mean you have aids" No. In AIDS, the immune...
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Jeanne B
Supporter
Lupus is a horrible disease that attacks the whole body and knows no age limits. Help find a cure!
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beatrice
Diagnosed at 28
i would like others to know the seriousness of lupus.
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Colleen Mc
Supporter
Lupus is not the illness that most people think it is...a few aches and pains...take some medication and you'll feel better. That's just not it!!!! SLE is a life-...
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Claudia P
Supporter
That it is REAl! Someone living in your neighborhood,co worker,grocer,banker has LUPUS.
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4Katerbug
Supporter
Obviously, we need to find a cure for SLE! However, in the meantime, we must find better treatment. The only way this can happen is to make the world more aware o...
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4Katerbug
Supporter
This disease is so misunderstood. Lupus is not about a few aches and pains. It can and does take the lives of our children, parents and friends! I would know, it...
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LelaKent
Diagnosed at 22
I want others to know that each case is different, that not everyone is the same, that is what makes this disease so difficult. I also want people to know when the...
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survivor
Diagnosed at 50
What I have found out and still realizing that their are still some in the medical field that are either ignorant of Lupus and it's many symtoms or symply do not c...
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Tamara
Diagnosed at 40
It's out there and you can survive it. Learn more.
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Mickky44
Diagnosed at 44
The pain is undescribable. It cause you to think maybe its in your head because you can't describe it. The pain never ends, even with medication you live in a const...
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Rachel C
Supporter
My Daughter was diagnosed with SLE when she was 15 yaers old.She is going to be 30 this May, she has endured diayaliss, a kidney transplant and several surgeries th...
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arnichol
Supporter
Lupus is a real disease! And it's serious. It's not just the common cold, it's a life changing disease that has no cure!
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Crwtrobot
Diagnosed at 29
Just that it exists and how much it impacts those living with it and their families.
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Paola
Diagnosed at 27
Just because I look fine, doesn't mean I feel that way. I wish people would educate themselves on what Lupus really is. I don't want to hear, "you're going to be ju...
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KG1397
Diagnosed at 17
I want people to understand that the effects of lupus are not always visible.
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Philip
Supporter
That I have multiple friends who live with this and so many people out there do not know about Lupus nor take the time to understand how it affects people. It is ti...
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JaLesa
Supporter
Lupus is an autoimmune disease that can damage any organ in the body and can cause life-threatening consequences. Please get to know what it is and that if you know...
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TeresaB
Diagnosed at 25
I have lived with lupus for approx. 40 years but was never diagnosed until during childbirth. It is a continual fight everyday!! You have to be a fighter to keep ah...
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RavishRhia
Diagnosed at 48
You must battle Lupus everyday of your life. Each day brings something new, good or bad. Yet, you can live a somewhat normal life if you fight the good fight
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Arlene
Diagnosed at 21
Lupus wears many "faces. It's a potentially life-threatening disease depending on which organ your immune system "attacks". It's definitely life altering and sinc...
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Jackie(:
Diagnosed at 14
that it really is not fun living with this disease as a teenager and alters lifes so much and i would LOVE for a cure to be found.
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Carrie
Supporter
Just because you can't see it doesn't mean it isn't there.
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Kim
Diagnosed at 35
Please learn about lupus and support those who have it. We may not show on the outside that it is difficult but it is a very painful thing to live with.
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jlynn
Diagnosed at 43
I know that you can have it for a very long time and not know about it. It took a long, long time for them to diagnos my condition. Probably have had it since I w...
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Alicia
Diagnosed at 24
Lupus is an incredibly unpredictable disease. One day you can be feeling okay and doing well, and the next you can hardly get out of bed. The unpredictability mak...
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Rachel
Diagnosed at 9
Lupus is one of those diseases where it does not look like the person is suffering, but they are. My doctor says if the patient begins to show physical symptoms, th...
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efell
Diagnosed at 44
If u know someone with Lupus be very kind because most of symptoms and pain are internal and not visible to anyone else. However, the pain is very real and on some ...
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Jenn
Diagnosed at 19
It's hard to tell from the outside, and it causes a lot of unseen pain. But it's something that will always be there that we just have to accept and get through it....
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Amy Massey
Diagnosed at 32
Lupus is a very unpredictable disease thats affects millions of people each year.. no two cases are alike as lupus masquerades as so many different ailments.. Lupus...
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LPSurvivor
Diagnosed at 31
Lupus is real. It is something that us that have it deal with everyday. Lupus is not a disease of the past, it is a disease of the here and now. It can affect an...
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Cindy
Diagnosed at 32
When people living with Lupus say "Even my hair hurts" .... it truely DOES hurt....
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BSquared
Diagnosed at 35
Lupus is invisible to others but so real to us. It changes your life but isn't the end of your life.
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Lanett
Diagnosed at 48
When you look at a Lupus patient looks are deceiving, the pain we live with is horrible and cannot be explained. All the symptoms over the years were explained away...
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Megan
Diagnosed at 16
Too often I am asked "What is Lupus?". I want people to know more, so that they may understand even a little about the battle we fight every day. Lupus is painful, ...
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Cara
Diagnosed at 44
This disease is real, it affects millions in many different ways. No one has the same symptoms at the same time. It's not a disease patients make up in their head...
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Teresa
Diagnosed at 47
I started experiencing Lupus symptoms after the birth of my first child. I was 34 years old. I was diagnosed at the age of 47. Little was known about lupus, so no...
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Kathryn
Diagnosed at 23
Lupus is an invisable disease and most "luppies" don't look sick.
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chancock
Diagnosed at 26
You can't always see it, but I almost always feel it. Somedays are better than others. People that know or love someone with Lupus need to read more about it. Get e...
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ShaunaT36
Diagnosed at 24
Lupus is a kind of disease that can strip the self-esteem of the person that is living with it. It can make the person too tired to enjoy activities that are normal...
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brittluck
Diagnosed at 34
It is real! We may not look sick, but we are. :(
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