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Virginia

LFA, DC/MD/VA Chapter
(202) 349-1167

Michelle
Diagnosed at 18
I want others to know that lupus does not mean the end of a life! Some of us are on dialysis and some have full time jobs. We all live very different lives with thi...
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dorothy922
Supporter
I want people to learn more about this disease and the effects of it. People know the name but many don't know what it does to a person living with lupus and those ...
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Toots
Diagnosed at 58
PLEASE spread the word about lupus! We need to make everyone aware...including doctors. There are MANY people suffering for YEARS before they are diagnosed. It can ...
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Shawn
Diagnosed at 15
Lupus has altered the course of my life. I have had to deal with the lesions that will not go away, I have lost all the hair in top of my head, I live in pain, dea...
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Tonya
Diagnosed at 20
I was sick for many years before getting my diagnoses. Lupus takes a lot from me including my hair, but fighthing lupus has made me a stronger person.
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Diane
Diagnosed at 48
I went for years being fatigue. Sore and stiff And just not feeling like my self I got two superficial bloodclots then they tested me in the hospital for lupus wen...
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Danny
Diagnosed at 36
I was diagnosed whith systimic lupus/sojgrens also have the raynuads and ra.at the age of 36 iwill be turning 45 this week on the out side you would never no that i...
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Seven
Supporter
You cannot look at me and know my pain! I'm frustrated, I'm exhausted, my hair falls out, my skin breaks out, I ache...sometimes my shoulder, sometimes my knees, m...
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Ro
Diagnosed at 48
I'm just beginning this journey. Finally diagnosed, but there have been signs on and off for many years.
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luppyheart
Diagnosed at 52
That you can look perfectly normal outside and be miserable inside
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Retired
Diagnosed at 62
Press your doctors to find what's wrong. - they do not test - I had it 16 years before diagnosis and suffered through the migraine headaches of APS daily.
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Jenn
Diagnosed at 22
Lupus is it's own and will attack when it feels so I say take it for what it is and just try to be/live for you everyday and take it as so daily.
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catgrandma
Diagnosed at 38
Lupus is not a death sentence although that's what I thought when I was diagnosed at around age 38. I had a skin rash on my chest and back. A doctor did a biopsy an...
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LaZetta D.
Diagnosed at 39
I spoken with several people and it seems that Lupus affects each person differently. Sometimes that can be frustrating when you're hit with a new symptom and cann...
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Annie
Diagnosed at 48
Lupus can can not only affect all aspects of your life but your families lives also.
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Pam
Diagnosed at 15
For those recently diagnosed, you can live a normal life! For those who've lived with SLE, you're not alone. I have had SLE for 39 years! I've been a military wife ...
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Crysfaughn
Diagnosed at 35
Lupus doesn't show itself like most illnesses, not looking sick or having the same symptoms twice doesn't change the fact that we are living with a chronic illness ...
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michelle
Supporter
I HAVE BEEN LIVING WITH LUPUS FOR THE LAST 10 YEARS AND I STILL DONT UNDERSTAND EVERYTHING ABOUT THIS DISEASE.
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Danielle
Diagnosed at 35
I struggle with severe pain, joint swelling and kidney failure. My liver has recently been damaged due to the high doses of medications I have to take daily.
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Chaos
Diagnosed at 30
It is a terifying invisible MONSTER! I look fine,im beutiful,in shape!? Thats what people see,,im in PAIN,weak,cant breath,thats what im living! I want to scream!!...
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shemariah
Diagnosed at 31
Sle Lupus has affected my body in numerous ways from my muscles to lost pregnancies to a hysterectomy to me losing my best friend to me being medically discharged f...
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J Altura
Diagnosed at 37
Lupus is a very complicated disease. There are days when I feel great 1 min then the next min I don't. I currently have pleurisy which literally feels like an eleph...
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Thone
Diagnosed at 17
Lupus is a mysterious disease that effects approximately 1.5 million Americans. It has many faces and does not discriminate among gender or race. It is a cruel di...
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Qudisha
Diagnosed at 25
Lupus is a mystery disease. Everyday is different day and a struggle and everybody's lupus struggle is different ... Just because we don't look sick doesn't mean w...
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Caroline
Diagnosed at 40
We are all fighting a disease that to many is invisible. We are not lazy, we aren't just "sick all the time" we are fighting. Fighting for a quality of life that ot...
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Laurie
Diagnosed at 31
Lupus is different for all who are diagnosed. Often the problems and pain that we experience are unseen, internal. It may be a complicated disease, sometimes deadly...
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Amanda
Diagnosed at 27
SLE is a very real disease. What we need more than anything (aside from proper treatment) is support, caring, and understanding from our family and friends. It is t...
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Neva
Diagnosed at 19
Even though it doesnt show on the outside, God has given us all a heavy cross to carry. This blog just goes to show how UNLAZY we all truly are and this debilatatin...
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Tameka
Supporter
I want people to know that even though we don't look sick doesn't mean we don't suffer. So many people need to be educated about Lupus because it has become so prev...
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G. Barnes
Diagnosed at 34
This is a disease that people need support. It is valuable to discuss the disease and find out how others are coping with it.
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sandra
Supporter
my husband has been living with lupus for 7 years and i have seen him go from a healthy person to one that lives with constant pain some days so bad he can hardly m...
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Jay
Supporter
My girlfriend have lupus and i support her because i love she so much... She have and she fight for lupus and she wanna find a cure and i wanna find the cure Please...
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Sarah
Diagnosed at 25
I Have been bless of lupus. I have alot to say, reading about it explain everything.
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Student
Supporter
I whant peopla to understand that Lupus is not a joke, that is something to be afraid about. Many people dont realize how bad it is to have Lupus especially at a yo...
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Christal
Diagnosed at 15
I want people to understand that Lupus is not a joke, that is something to be afraid about. Many people dont realize how bad it is to have Lupus especially at a you...
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IAMWIAM
Diagnosed at 49
Lupus has many faces. Somedays life may be good, our spirits are high, and then others we may be feeling tired and down.
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christian
Diagnosed at 35
I'd like people to realize that even though most of us look and act healthy enough, we live sick and in pain and being that we live with it everyday we make it look...
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menmy5kids
Diagnosed at 26
Lupus does not have to run your life. Take care of yourself and don't let people tell you how you feel. Educate your family cause they may not understand, but under...
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Shannon
Supporter
When my daughter was 6 she had some spots on her face that would not go away they would scab up and fall off and would continue to do that. She would not touch them...
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Trina
Supporter
lupus is a horrible disease it affects you mentally and physically.
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Junipermom
Diagnosed at 38
Just b/c i dont look sick does not mean i dont hurt! I am always tired, no matter how much rest or sleep I get. I hurt more often now. Somedays are just so easy and...
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TAJ-VA
Diagnosed at 23
Just because someone doesn't 'look like' they have a disease doesn't mean they don't. If you're unsure about a chronic illness, research or ask so you don't come of...
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Kim P
Diagnosed at 23
That just because I don't look sick, doesn't mean I don't hurt. That what you can do and feel fine, I get very tired doing. That there are just some days I am so ti...
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Teresa
Supporter
Lupus is a life threatening disease. Proper diagnosis is crucial for prompt treatment.
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SARAI
Diagnosed at 24
Stay Strong!
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Jarelle
Supporter
That it had given my mom another way to show how each everyday that I live is another day that she didn't have. That though I am weak her strength made a lasting im...
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Firenze214
Diagnosed at 44
Lupus is real and Lupus sucks.
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Tra
Diagnosed at 28
Lupus is an everyday rollercoater of symptoms. No one deserves this pain.
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brenda13
Diagnosed at 55
Lupus is a disease that is like a coat of many colors...it mimics so many other diseases. It took me about 15 years and 5 doctors to get a diagnosis. Lupus will f...
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Joanne
Diagnosed at 24
Lupus is a disease with many faces. Just because a person looks "well" does not mean they are. Lupus affects many different organs. There needs to be MORE researc...
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Brittany
Diagnosed at 28
When I first told people I was diagnosed with Lupus, they looked at me as though it was something that would pass - sort of a "hang in there, you'll get through thi...
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juanita
Supporter
i call it the silent killer
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Carshena
Diagnosed at 25
To stay strong and have faith.
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Veronica
Supporter
Lupus is the invisible disease that attacks whenever and whatever it wants in your body. Although it isn't likely to kill you, people still die from complications f...
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Ramla
Diagnosed at 21
Just because you have this diagnosis, it should not define who you are nor run your entire life.
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Purposed83
Supporter
It affects everyone differently. Everyone manages it differently. Ask us questions and have consideration that one person may experience physical, mental,and social...
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Wanda
Diagnosed at 27
Lupus is an autoimmune disease that can be difficult to diagnose because it mimics other diseases.
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Yaitza
Diagnosed at 16
Lupus awareness is steadily growing but more is needed. A chronic illness such as lupus is already enough to deal with let alone it being an "invisible" disease,...
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sunshine
Diagnosed at 42
I have been dealing with Rhebdomyolosis since 2000, I seen about 15 doctors or more I stop counting. I been told I have this and I have that. I been hospitalized 4 ...
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Allie
Supporter
Lupus is a chronic inflammatory disease that can affect various parts of the body, especially the skin, joints, blood, and kidneys. At least 1.5 million Americans a...
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AMANDA
Diagnosed at 12
I WAS THE 2ND YOUNGEST CHILD DIGNOSED AS HAVING LUPUS I WAS 12 YEARS OLD I AM NOW TURNING 35 THIS YEAR ALL MY LIFE I HAVE HAD LUPUS BUT THANK GOD IT IS A DISEASE TH...
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Millisa
Diagnosed at 27
Lupus is something you can't see. That's why it is so misunderstood. If you "look" ok, you must "feel" ok. Definately not the case with lupus. So for those who may ...
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Precious
Diagnosed at 16
I would like to let evryone know that having Lupus is not the end of the World. I have good days & some bad days. I was diagnosed at 16 years old. Having Lupus real...
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RLEPryor
Diagnosed at 49
Lupus will create some very difficult days, but you can and will get pass them. It is like many things in life, it will not be instant, it will take work.
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Mikki
Diagnosed at 45
Lupus is not easy to dx. If your symptons fit the profile do give up, find a Doctor who will listen and make the proper dx.
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Robin
Diagnosed at 38
Lupus changes your life but life doesn't stop just because you have Lupus.
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Tammy
Diagnosed at 23
Lupus is a unique disease and always unpredictable. Living with lupus since the age of 18 and diagnosed at 23, I am now 45, this is a long life with this illness. I...
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Tasha
Diagnosed at 32
I want people to know just because you may "look" well, that does not mean that you are suffering with the disease.
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TinaD
Diagnosed at 37
It stinks! But it does make you a stronger person emotionally and spiritually if you allow it to. So it is both a curse and a blessing. I try to remember 2 Corinthi...
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Elizabeth
Diagnosed at 22
That's just it. I want people to know about Lupus. When people find out that I have this disease, many don't know what it is or means for me. I want people to know ...
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Liz Murphy
Supporter
Early diagnosis and constant education can improve the quality of life of lupus patients. The workshops, teleconferences and support groups offered by the Lupus Fou...
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Kim
Diagnosed at 30
Lupus has ran in my family for years. I have had family members die from this disease back when it was untreatable. As of now me and my cousin are the only ones. ...
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Jock3
Supporter
Lupus is a disease which needs to be more understood by the public. Please support the cause. Kate your Amazing :)
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dkbmcclell
Diagnosed at 25
1) just because we don't "look" sick doesn't mean we aren't 2) I miss my old self 3) I talk myself into getting through another day every morning I get up 4) I d...
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La poppis
Diagnosed at 25
I might look "normal" but that doesn't mean I'm ok. I might be sick but that doesn't mean I'm not capable. If not for my family it would be difficult for me to be ...
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Hope
Diagnosed at 54
I have been in the process of being diagnosed during this past years but I believe that I have had lipus all my life. in these past 10 years I have come close to l...
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Ghent Gal
Diagnosed at 40
I want others to know that you can be sick without showing outward symptoms. Friends need to understand that we have limitations. Not committing does not mean that ...
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WARR2WARR
Diagnosed at 32
You can live life to the fullest with lupus. The only limits are the ones you set on yourself.
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Sheila
Diagnosed at 47
That lupus affects your whole life. It is a real disease and if you care about someone that has it you should take the time to learn about it.
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Miranda
Diagnosed at 16
Lupus is one of the more scariest things I've been through. When you have lupus you become stronger. Which I am thankful for.
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Jenn Lewis
Diagnosed at 22
Well there are so many things we all could say about this complex, disabling disease but only a few should suffice. It gives you no control over your body when nee...
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LINDA
Diagnosed at 37
Even though there is no cure, Lupus can be controlled as long as you follow doctors' orders and get regular check ups. I have a host of doctors that work together w...
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Donielle S
Diagnosed at 32
Lupus doesn't care if you are a type-A personality, driven and ambitious, in the prime of your life with plans. That is as hard to come to terms with as the disease...
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Anastasia
Diagnosed at 29
There are two things I would like others to know. First for those that have lupus. This disease does not mean that your life is over. Stay positive, rest when yo...
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AshleyG89
Diagnosed at 21
Lupus is an autoimmune disease, which means that instead of just attacking foreign substances, such as bacteria and viruses, your immune system also turns against h...
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Jessica MC
Diagnosed at 20
Lupus is not a curse. It is not contagious. It is not the end of the world. In my life, Lupus has been a blessing for me to recognize that I can help those who are ...
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Alanna
Diagnosed at 27
I want people to be aware that this is an "INVISIBLE" disease. I may look like I am fine, but inside I am in pain. My body hurts and I am exhausted. I am frustat...
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Sherri
Diagnosed at 46
i did not get sick or showing symptoms until i was 35 yrs old after the birth of my son. my siste, who is 5 yrs younger than me, has been sick since age 14. it took...
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run4life
Diagnosed at 23
You should never give up. It is such a frustrating disease that is affected by the smallest things in your life (sleep, medications, weather, etc) and some days can...
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Crizti
Diagnosed at 15
I would not be who I am if it were not for my Lupus. The profound effect that it has had on my life...Lupus has been a factor in every major decision I've made in ...
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Nancy
Supporter
It is a disease that you cannot see but mostly certainly feel! The aching, pain and itching....never knowing from one day to the next what to expect.
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Rodrigo
Diagnosed at 19
Lupus is a very serious matter no matter how small it is, Take your medication do as the doctor says and always be positive stay healthy its hard, but life goes on....
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Ealora
Diagnosed at 28
Living with Lupus is truly a daily struggle. One day I may be fine and the next day, I may need help doing simple tasks. Because Lupus is an invisible disease, it...
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Mary
Supporter
Lupus is a complex and life-altering disease that impacts each person differently. Greater awareness and increased medical research is needed.
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