Carolanne
I have SLE, which is Systemic Lupus Erythmatosis; it is cunning and cruel to the human body...and spirit. It is debilitating and always present--whether others can...
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Tammy
Everyone's right, it's a very cruel disease that most don't understand due to people seeing us and we all look fine! It's very painful, can cause mind confusion , s...
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Pauline
It's a chronic auto immune disease that goes unnoticed. Even if I appear great in appearance, doesn't mean I am not internally fighting my own battle to live. It's ...
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Tom F.
I was 19 when, imideately after Kidney Failure, I was diagnosed with Lupus. After having both hips replaced 05', 07', I started my career. I love life thanks to the...
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Chris
One and a half million Americans have Lupus yet its barely known and not considered a major disorder. More people suffer from Lupus than Cystic Fibrosis, Multiple s...
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Sareth
Dear Lupus: You are a mysteriously selfish chronic disease always taking all of my energy, I am tired of the constant battle of fatigue. You are way under funded, m...
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Autumn B.
I would love to see more people know about lupus in general. To have a basic understanding of how lupus effects the body and the symptoms. My hope is that soon ev...
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Bina
I want people to know I'm not lazy! I'm not a wimp or being a baby. I'm not faking it! I hurt ALL THE TIME. All day, every day. And I want people to know I'm trying...
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GEA
Its hard to live with a disease that doesnt always show on the outside. How do you explain when its usually described with 'I'm tired' or 'I just dont feel good'. D...
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Jensunami
I don't look sick. I didn't even think that I was sick. It wasn't until my kidneys got involved that I realized the symptoms that I have had for so long weren't nor...
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Addy
Even with great organizations like the Lupus Foundation of America, awareness is still not spread wide enough for lupus to be a household name like diabetes, or can...
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Isla
Lupus has struck three members of my family including myself. When I was diagnosed I felt a sense of relief that finally I had a name to what I had been experienci...
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kellieB
My name is Kellie and I was diagnosed with lupus and rheumatoid arthritis two years ago. It is a silent but serious disease. It effects so many of us, and some of u...
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Alonna
Looking good doesn't mean you feel good. Just because I have survived 20 years doesn't mean I am out of the woods, every day is a new challenge!
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Maggie
Lupus is often an invisible disease. I can't count how many times I've been told "you look great." Unfortunately, people can't see inside my body to see the chron...
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Andrea
Don't give up !!! It took me five years to get diagnosed even with 2 positive test a year prior to getting diagnosed again a year later if one doctor blew me off li...
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Pawpal
You can live a long time with it but you have to remember every day, I am in charge not Lupus, and you have to learn to take of your self
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Vidya
It is incredibly frustrating to be too tired to do normal things and to constantly battle pain in your body. It can be depressing and challenging, but it can also b...
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Kasie
Lupus is painful, it is real, it is ignored. Lupus for me attacks my skin (lost my hair and permanent scarring) it attacks my joints, my spleen, I suffer from insom...
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Shantell
I was 14 when I was diagnosed and at that time I didn't believe it because at that time I thought "Im too young to be sick!" I was wrong and even though I was scare...
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Heather
Lupus is insidious. Because lupus flares come and go, and vary in intensity and duration, lupus is very difficult to diagnose. Lupus can masquerade as a multitude ...
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Val F
I have SLE that affected my lungs & diaphragm. It took almost 2yrs to diagnose, because every year it seem to change. It started with pleurisy type of pain in my l...
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Aim to sew
As you can see by My age I was not diagnosed early. That doesn't mean I didn't have Lupus for a long time. For the skin problems it was "maybe its Your laundry soap...
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Courtnay
Lupus is a serious, potentially life-threatening illness that affects all aspects of your life. Even though lupus patients often look healthy, they may be suffering...
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Maria
Lupus affects your loved ones. I have learned to do my own research and found out that my nutrition and exercise are major components in helping my flare ups. I hav...
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Kami
Lupus is a Chronic life changing and life threatening disease. It is not always apparent to others on the outside just how much Lupus is destroying our insides. Wha...
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Stephanie
You can't always tell someone has Lupus, because we don't always "look sick". Keeping up your appearance doesn't mean we aren't feeling exhausted and crappy and in ...
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Burbank
Lupus is a terrible disease that affects not only the patient but also the family surrounding them. It is a disease of ups & downs & you generally tend to look wel...
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Carebear76
Lupus is a very tricky disease. Everyone is different some people have it mild and some have it severe. Hard to diagnose and so many symtoms. Rash, nausea, joint pa...
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Clearview
Lupus doesn't define me. It's what my daughter and I live with...not who we are.
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Shell
Lupus is real and it's everywhere. If you take the time to ask, you'll find that someone you know does have lupus. As people become aware of lupus, the symptoms,and...
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Leticia
Lupus & related autoimmune diseases impact the lives of millions of Americans. There is no cure, and it can often be difficult to treat due to it's complexity and t...
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pb51174
Lupus is the biggest mimicker of every disease and it take participation from you and the right doctor to find the right medicines for your symptoms. It can be hard...
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Marcia
Lupus is not a known disease. Most people say I've heard of it , but I don't know what it is. It's truly important to take the time to ask what is Lupus. A person w...
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Leslie K.
It's a disease that is "invisible" and often not taken seriously.
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Lady Lupus
I realized that managing my Lupus takes a village. So I want to thank all my fellow tribesmen and women for your support and strength, which helps me take on Lupus ...
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Marissa
Lupus is a chronic disease & there is no cure. It affects not just the person living with Lupus but it affects family & friends.
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Dot Bell
Lupus changes everything you do because you never know how you will fell day to day. Don't fell sorry for us ask what can I do to help.
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